Date Posted:21:30:37 05/06/00 Sat Author: Bobak K. Darvish, Subject: Re: Inclusion Body Myopathy In reply to:
Daniel Darvish, MD
's message, "Re: Inclusion Body Myopathy" on 23:26:37 04/10/00 Mon
> > I just received a copy of the "second opinion" my
> > neurologist set up. He sent my muscle biopsy slides
> > and info. to the Mayo Clinic. The "diagnosis"
> states:
> > "Inclusion Body Myopathy" and "The patient's age and
> > absence of inflammation point to the diagnosis of
> > familial inclusion body myopathy rather than
> inclusion
> > body myositis." I was wondering, are Familial
> > Inclusion Body Myopathy, Inclusion Body Myopathy, and
> > Hereditary Inclusion Body Myopathy all the same
> thing?
> > Every time I do a web search for just Inclusion Body
> > Myopathy I come up with HIBM. Thanks. Thanks also
> > for your answer to my question about the
> antioxidents,
> > I have started taking them!
>
> Dear Cher,
> What is your background? tell me more about yourself.
> You can also email me if you wish.
>
> I am very much intereted in obtaining DNA sample from
> you, which can be obtained with a routine blood
> sample. We can send your sample to all the
> laboratories throughout the world who are actively
> resesarching vacuolar myopathies. With your help, we
> can find out what causes these vacuoles in the
> muscles, and what causes the muscle cell death, and
> maybe stop the process. Please see the research
> section. Also, if you don't mind, I would like to
> contact your doctor/neurologist.
>
> sincerely Yours,
> daniel
