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Date Posted: 20:41:55 10/06/17 Fri
Author: tom
Author Host/IP: n11211984239.netvigator.com / 112.119.84.239
Subject: 罕見遺傳疾病

財團法人罕見疾病基金會(台灣)
http://www.tfrd.org.tw/tfrd/
http://www.tfrd.org.tw/tfrd/link_a
罕見遺傳疾病一點通(台灣)
http://web.tfrd.org.tw/
The National Organization for Rare Disorders (NORD) (USA)
https://rarediseases.org/
Canadian Organization for Rare Disorders (CORD)
http://www.raredisorders.ca/
Rare Diseases Europe
http://www.eurordis.org/
Hong Kong Paediatric Rheumatism Association 香港小腦萎縮症協會
http://hkscaa.org/
相關網址
http://hkscaa.org/main_link.php
社區資源
http://hkscaa.org/main_social_resources.php
兒童危重病基金 Children's Catastrophic Disease Foundation
http://paed.hku.hk/ccdf/
Joshua Hellmann Foundation
Newborn Metabolic Screening Program

夏約書 – 新生兒代謝病篩查計劃
http://www.obg.cuhk.edu.hk/fetal-medicine/fetal-medicine_services/iem/
http://www.obg.cuhk.edu.hk/fetal-medicine/overview/

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