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Date Posted: 18:58:14 11/07/17 Tue
Author: helen
Author Host/IP: d1-210-0-143-118-on-nets.com / 118.143.0.210
Subject: Orphanet：人類最全的罕見病知識庫

Orphanet：人類最全的罕見病知識庫

http://www.orpha.net/consor/cgi-bin/index.php

http://www.orpha.net/

http://www.jianshu.com/p/ecda3ebc518a

http://www.sohu.com/a/18746147_119250

罕見疾病醫療平台

http://www.pediascape.cn/rare/

http://www.shanghai.gov.cn/shanghai/node2314/node2319/n31973/n31991/u21ai1111976.shtml

OMIM數據庫
http://www.omim.org/

DECIPHER數據庫
https://decipher.sanger.ac.uk/index

DGV數據庫
http://dgv.tcag.ca/dgv/app/home

罕見疾病一點通-疾病資料庫

http://web.tfrd.org.tw/genehelp/diseaseDatabase.html?selectedIndex=0

罕見疾病一點通

http://web.tfrd.org.tw/

罕見疾病藥物資料庫系統
http://www.pharmaceutic.idv.tw/news/news.php?page=1

台大醫院基因醫學部

http://www.ntuh.gov.tw/gene/default.aspx

全國認證遺傳諮詢中心
http://www.ntuh.gov.tw/gene/link/default.aspx

細胞遺傳學檢驗機構
http://www.ntuh.gov.tw/gene/link/Pages/cytolist1.aspx

遺傳基因檢驗機構
http://www.ntuh.gov.tw/gene/pages/%E9%81%BA%E5%82%B3%E6%80%A7%E5%8F%8A%E7%BD%95%EF%A8%8A%E7%96%BE%E7%97%85%E6%AA%A2%E9%A9%97%E6%A9%9F%E6%A7%8B.pdf

財團法人罕見疾病基金會

http://www.tfrd.org.tw/tfrd/

國外相關網站

http://www.tfrd.org.tw/tfrd/link_d

罕見病

https://zh.wikipedia.org/zh-hk/%E7%BD%95%E8%A7%81%E7%97%85

罕見疾病 - 特殊營養食品暨緊急需用藥物物流中心

http://fdrdl.cmuh.org.tw/

兒童罕見病的發現及治療

https://www.hkpl.gov.hk/tc/extension-activities/event-detail/88251/rare-diseases-of-the-new-born-detection-and-management

講座重溫 (錄音)
https://mmis.hkpl.gov.hk/coverpage/-/coverpage/view?_coverpage_WAR_mmisportalportlet_actual_q=%28%20dc.title.series%3A%28%22%E8%82%B2%E9%86%AB%E9%80%A0%E6%89%8D%22%29%29%20AND+%28%20verbatim_dc.category.category%3A%28%22Video%22%29%20OR+verbatim_dc.category.category%3A%28%22Audio%22%29%29&_coverpage_WAR_mmisportalportlet_sort_field=dc.publicationdate_bsort&p_r_p_-1078056564_c=QF757YsWv5%2FH7zGe%2FKF%2BFPxOpNwA071J&_coverpage_WAR_mmisportalportlet_sort_order=desc&_coverpage_WAR_mmisportalportlet_o=0


講座重溫 (錄影)
https://mmis.hkpl.gov.hk/coverpage/-/coverpage/view?_coverpage_WAR_mmisportalportlet_actual_q=%28%20dc.title.series%3A%28%22%E8%82%B2%E9%86%AB%E9%80%A0%E6%89%8D%22%29%29%20AND+%28%20verbatim_dc.category.category%3A%28%22Video%22%29%20OR+verbatim_dc.category.category%3A%28%22Audio%22%29%29&_coverpage_WAR_mmisportalportlet_sort_field=dc.publicationdate_bsort&p_r_p_-1078056564_c=QF757YsWv5%2FH7zGe%2FKF%2BFL72OOE4MDdD&_coverpage_WAR_mmisportalportlet_sort_order=desc&_coverpage_WAR_mmisportalportlet_o=1

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