Re: About to start Novantrone -- Friends with MS Novantrone forum

[ Show ]

Support VoyForums

[ Shrink ]

VoyForums Announcement: Programming and providing support for this service has been a labor of love since 1997. We are one of the few services online who values our users' privacy, and have never sold your information. We have even fought hard to defend your privacy in legal cases; however, we've done it with almost no financial support -- paying out of pocket to continue providing the service. Due to the issues imposed on us by advertisers, we also stopped hosting most ads on the forums many years ago. We hope you appreciate our efforts.

Show your support by donating any amount. (Note: We are still technically a for-profit company, so your contribution is not tax-deductible.) PayPal Acct: Feedback:

Donate to VoyForums (PayPal):

[ Login ] [ Contact Forum Admin ] [ Main index ] [ Post a new message ] [ Search | Check update time ]

Subject: Re: About to start Novantrone

Author:
debbie (happy, debbie)

[ Next Thread | Previous Thread | Next Message | Previous Message ]

Date Posted: 23:15:40 06/26/07 Tue
In reply to: Lisa 's message, "About to start Novantrone" on 19:21:19 03/29/06 Wed

>Hi everyone!
>A little about myself- I am turning "the big 40" this
>year and am married with four children. My first
>symptom was Opticneuritis way back when I was 21; not
>another one until I was 1 month pregnant with our
>second child who is now 81/2. At this point I was
>told to terminate the pregnancy - I obviously didn't
>listen and was diagnosed with an MRI after Emma was
>born. I was told to take interferon and tried it for
>6 months, then stopped. I didn't want to focus on the
>MS! My theory is, "nobody knows what their tomorrows
>are and life must go on", and so it did and still
>does. I had no other symptoms until 2 years ago - my
>left leg started to get "lazy" and it still is. I use
>a walking stick and after seeing a new neurologist
>(that's a bit of a tounge twister), I have decided to
>start Novantrone which is still in the trial stage
>here in Australia. I'm a little scared, however it's
>something I've been wanting to do for the last 18
>months. I do "peer support" for the MS Society here
>in Melbourne and have been for almost 6 years. I love
>talking to newly diagnosed patients who are scared of
>having children or getting married, because they think
>having children will make their MS worse. If I can
>make a difference to one person then I am happy. It's
>about not giving up and living in the truest sense of
>the word.
>Bye for now,
>Lisa
you have the same attitude i have. the way i figure it, what have we got to lose? i start in a couple months

[ Next Thread | Previous Thread | Next Message | Previous Message ]