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Subject: been on Novantrone since April 2006 Author: Tami [ Next Thread | Previous Thread | Next Message | Previous Message ] Date Posted: 20:59:15 10/04/07 Thu My husband is writing this because I do not see very well. I stared with MS in Nov of 2005 and quckly lost all feeling on the left side of my body, Lost my memory, sight in my right eye and some in my left eye and I started seeing things that were not there and having bouts of dolusions. I was on copaxone for about 4 months with no change. My Nero said it was the worst he had seen and referred me to another Nero more specialized in MS. After the first visit they put me in the hospital where I stayed for a week and then 3 weeks at a rehab center after getting massive amounts of IV steroids. My new nero said Novantrone was the only thing that would help. Now I can see better and I only get bad numbness when it gets close to three months and I have not gotten any more dolusions. I am scared though because I am on my 5th does and there is 12 max not sure how I will cope without it since it sems to be the only thing keeping ms at arms length. I am ususaly feeling better for about 10 weeks after a dose but then I start to slip backwards again. I think this drug is worth the risks the question i what do I do in a year or so when I cna not take it any more. I truly am scared. [ Next Thread | Previous Thread | Next Message | Previous Message ]