Author:
anna (beta->novantrone)
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Date Posted: 02:54:34 07/12/08 Sat
In reply to:
Susie
's message, "Switch from Beta-Inteferon to Novantron" on 07:14:48 09/28/04 Tue
Hi,
I'm 26, living with MS from 7 yrs. I had to switch to novantrone from betaseron, 'cause after 2 yrs of taking it betaseron stopped working. I started to have acute relapses and from 2 EDSS, I came to 4!. I am now after my third dose of novantrone (mitoxantrone) and I am not feeling well at all. I'd like to ask you when did you start to feel better. I am still walking, but I walk really badly. After first dose I had a relapse. After second dose I was feeling badly all the time, so my neuro decided to speed up the third dose- I've received it after just 2 month, not three. I am now 5 days after third dose, and I am not feeling better at all. How it is wih you. (I had to ask on foreign forum, 'cause in Poland people not really use it, especially young people) Thanks for answering me and sorry for my poor english;).
>My neurologist suggested to either increase the dose
>of Rebif (a Beta-Interferon drug), start a with
>Novatron or participate at a pilotstudy for a new
>drug. I am thankful for any kind of information, e.g.
>at what time you started with this drug, whether or
>not you continued with you original treatment, for how
>long you took Novatron and what effects you
>experiencened in particular. I am currently 26, was
>diagnosed 7 years ago and despite having taken Rebif
>for the last 4 years my symptoms have occured ever
>more often, if not to say during the last year one
>problem occurred after the other. Thus far all of my
>symptoms have faded again over time or after treatment
>with Cortison yet my doctor is not satisfied with my
>current condition, and nor am I.
>Thank you very much for any information.
>Best, Susie
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