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Date Posted: 12:10:42 07/29/13 Mon
Author: GoodWillTalking
Subject: Raven Update 7/25/13

Things have not been so great over the past week or I would have checked in here sooner. Thank you so much for all of these beautiful messages. The love and support out here is surreal. I've hit a snag in my recovery, and to say that I literally hate the hospital I go to (not a lot of selection out here), would be a gross understatement (horrible experience with Interventional Radiology there-waste of our time). The facility is quite nice, but that does you no good if it's filled with people who don't even have the time to care anymore. They fired practically everyone there that was kind or helpful. Who wants to fight a pack of wolves with all their arrogance and power when you are in the battle of your life (it takes all of my energy and resources just to fight this cancer). John and I feel incredibly dumbed down and placated every time we go there. I wish I were back in California where the choices would be limitless, but I'm not. Even worse is how they seem to treat women over men. I have never been the kind of person that ran around on a crusade feeling that women were discriminated against, but even John notices this around here. Without my only advocate at the hospital in which I am treated at (my long time Oncologist now gone), they dismiss our every concern and even treat us like children. It's outrageous and bizarre considering what kind of cancer I am dealing with.

To add to my pain is that we have not heard from my long time Oncologist, who was due to open up his own practice here soon (it's been 5 months since he left the hospital I go to, and only because, HE WAS THERE). I know this must take a great deal of energy, money, and planning, but I am losing hope. He was supposed to call me to go over the pictures we sent him from my recent PET Scan (the new Oncologist never even looked at them, and merely threw them in my folder right in front of us). She said that the report was enough (bad medicine would be putting things mildly). I have a rare and serious form of cancer, and this woman did not want to compare my pictures from my last PET Scan side by side as most decent Oncologists do to see if anything was missed or not noted! She didn't even look at the new pictures (there's a reason that the radiologist sends you home with a CD to give your Oncologist at your next appointment)! We still can't believe it!

Three and half weeks ago, he said I will call you TOMORROW when I get the pictures you sent me from the scan, and that's all she wrote. He had called to tell me the results of the written report, but as he has always said in the past, the pictures are half the equation. The radiologists do not always note everything, and can miss things as well. He knew that we were taking the time and money to send them to him next day air, and when we didn't hear from him for days on end, we checked to see that the CD got there OK, and it had. Neither John or I gets this even remotely. I waited all day on that Tuesday by the phone because he said I will call you tomorrow when I get the pictures. We don't know if he is dead, injured, wounded, or has written us off. If that's the case, I am all alone in this now. John and I literally do not know what to do. He has run out of leave where he works, and we can't just run to Sloan or MD Anderson, or Dana Farber. This Oncologist was all we had......

As if I was not dealing with enough, my mailbox was flooded with people who wanted to make me aware of some member on Twitter (I am not on Twitter) that is apparently telling actress Laura Wright, that (I) said that she was being let go! I wish this was a joke, and honestly thought it had to be at first, but it's not. I never said this! I left out a few scoops weeks ago when I told you that Kiki would not be Franco's daughter, but I never said that Laura Wright was out! John looked at me tonight, with everything we are going through, and said..........has the whole world gone mad or what here.....! I need THIS NOW! How dare this man put words in my mouth that were never spoken by me! I honestly can't believe it. I found what they were talking about, and his handle is Mike@Knight_Ryder_33, and he is telling Laura the following "I wish I could tell you this more private. Blogger Ravenbeauty is telling fans that you were from the show. Continued next tweet"..............! What! It's incredibly disappointing and rather cruel considering the fact that I am battling cancer, and nonsense like this was neither deserved (that never came from me) nor is it good for my spirit right now. Whoever he is, he is a monster......

What a nightmarish week........

Please know that seeing your notes and all the pretty pictures and suggestions made me smile on a night where I am just not feeling much like smiling. Exhausted, losing hope again, and now this......

I love you guys so much. Thank you for the support.

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Replies:

[> Re: Raven Update 7/25/13 -- Hannah (Healing Light, Hope, and Love), 22:20:19 07/29/13 Mon [1]

(((Dearest Ravenbeauty)))

Think positive - that genius Oncologist may be looking at new options for your treatment (or, additional ones). It may be the reason he hasn't gotten back to you yet...

Love you!
Hannah


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[> Re: Raven Update 7/25/13 -- Marie, 09:38:53 08/01/13 Thu [1]

Raven,

Here are helpful sites. Please take a few minutes to go and review each one. I would try to track down the doctor using the following 2

http://www.cancer.net/all-about-cancer/newly-diagnosed/find-oncologist/find-oncologist-database
http://www.intelius.com/

Financial needs
http://www.cancer.org/acs/groups/cid/documents/webcontent/002562-pdf.pdf

Problems with Health Care
http://www.hhs.gov/about/

Prayers are sent your way.


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