| Subject: Requesting your help in research for fibromyalgia: |
Author:
Anonymous
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Date Posted: 16:15:12 05/18/09 Mon
AFFTER's 3rd annual F.I.B.R.O. Survey, 2009
Fibromyalgia Internet Based Research Online)
Some of you may not know that I suffer with fibromyalgia (FMS). It is a chronic, painful illness with no known cause, cure or effective treatments. It is a life-altering condition that affects over 10 million Americans. I am the fundraising director of a non-profit organization that is conducting a research project for fibromyalgia, and I am hoping you can help in this effort to further our knowledge of this illness I am suffering with.
I ask if you will volunteer 10 minutes of your time to participate in this fibromyalgia research initiative in the form of an online survey. Even if you do not have fibromyalgia, your input is important. In order for a study to have more value, it needs to include a group of people who are not afflicted with the illness (called a control group) so the data from the two groups can be compared. That is why I am calling on you, my friends and family members, to help with this endeavor.
Use this URL:
http://www.surveymonkey.com/s.aspx?sm=hoVU2FsxNax81D9eiOimXw_3d_3d
Please be assured, this information is strictly for research purposes and your privacy is of the utmost importance! AFFTER does NOT share personal information with ANYONE for ANY reason. You do not even have to provide your name on the survey.
Participation in surveys from the last two years provided data for nine abstracts (research summaries), which helped gain more understanding about this complex condition. These abstracts were selected for presentation at each of the scientific meetings of the ACR ( American College of Rheumatology) in 2007 and 2008. The abstracts were also published in the Journal of Arthritis and Rheumatism and can be viewed at their website:
http://www.affter. org/research. htm
Although there is still no definitive laboratory test to confirm its existence, progress is being made. Research using functional MRI’s has revealed that more pain can be visualized in the brain of FMS patients than in healthy controls that are being exposed to identical stimuli. You can learn more about fibromyalgia on the website www.affter.org.
**This survey will remain open for less than one week.
I hope you will help!
Thank you!
Miss Bridgette
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