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Date Posted: 09:22:39 05/12/02 Sun
Author: Anna
Author Host/IP: ip68-1-115-246.pn.at.cox.net / 68.1.115.246
Subject: IMHO
In reply to: Christine 's message, "Got my results" on 09:12:29 05/12/02 Sun

I'd want to know my genotype before I considered treatment. Kind of know my odds of winning, not that anybody can't beat this booger of a virus. I went through the 1st treatment not knowing my genotype. Found out my genotype before the 2nd treatment & almost killed me trying to kill the virus.
That sounds like a load for someone on treatment but different people react differently. Don't be to proud to holler "uncle" if it gets to be too much.
Good luck. X's & O's, Anna

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[> Hi Christine -- Susie, 09:40:48 05/12/02 Sun (bgp425870bgs.union01.nj.comcast.net/68.36.197.75)

You are sounding relieved. I am so glad. As far as the genotype, I would ask the doctor to draw the blood for that test because if you are going on treatment you will need to know the genotype because different genotypes have different lengths of treatment. Genotype 1's, which the majority of us are, need one year and genotype 2&3 can often get by with 6 months. I'd also ask him to be a bit more specific about the scarring in your liver. If your scarring is minimal you may want to wait until better treatments become available. Here are the stages of HCV:

Stage 0 = no scarring(fibrosis)

Stage 1 = minimal scarring

Stage 2 = moderate scarring

Stage 3 = called bridging fibrosis (areas of scar are starting to connect)

Stage 4 = cirrhosis (severe scarring)

It is difficult to answer your question about your schedule because everyone reacts differently to treatment. Some people breeze through with no complaints and on the other end some people have such a hard time they do not complete treatment. Most of us fall somewhere between those two extremes. I can tell you that the first time I treated, I was teaching first grade and I didn't miss any school. But it was hard. I think most of us deal with a lot of fatigue. My suggestion would be to free yourself up as much as possible, particularly the first month.

I wish you the very best, Christine and we are all so glad you are here at Voices.

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