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Date Posted: 11:28:57 04/24/02 Wed
Author: Cat
Author Host/IP: NoHost / 156.63.134.4
Subject: Hi Doris
In reply to: Doris 's message, "Question to Cat" on 11:11:11 04/24/02 Wed

His gut was all that was swollen. His legs and ankles have NEVER swollen, his doctor always checks them and they never are and never have been. He looked like he was nine months pregnant though.

The doctors have never said the dreaded words 'end stage' but with his former doctor predicting a transplant within five years, it seems (to me anyway) that if he isn't in end stage, then he has to be knocking on it. I don't know how long someone can be 'end stage' before they have to get a transplant or take the other route (the one we don't want to think about). I have never asked the docs flat out - I don't want to hear it said, know what I mean? I figure that if worse comes to worse and it's a transplant or else, I will have time to freak on that then.

I can tell you this. When Ron goes back to the doc next month, we are supposed to talk about options for trials. So, for the moment, I am still hopefull that something will stop this frigging monster in its tracks.

I think this disease is very different for everyone and the choices you make along the way have a big impact on what comes your way.

One other thing, Ron also has (at a year and a half ago) very tiny varacies, we were told there was no need to worry about them at that size. He will have them checked again very soon.

It seems to me that some people can have all kinds of complications and still deal with them fairly well. Some days for Ron and pretty bad, but some days are pretty good too.

And yes, I am one of the club also. A little gift to myself almost four years ago. What an idiot. Oh well, as Scarlett said, "I'll think about that tomorrow".

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