Re: Does anyone ever feel that they are crazy? -- LIMBOLAND

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Date Posted: 04:02:57 10/05/00 Thu
Author: SAM
Subject: Re: Does anyone ever feel that they are crazy?
In reply to: sam 's message, "Does anyone ever feel that they are crazy?" on 05:18:46 10/03/00 Tue

Hi SAM,
hey we share a name! I know what you mean and at my last visit a week ago I told my nuero I felt a littel crazy since I kep feeling all thses things and nothing was showing up. Luckily he told me he didn't think I was crazy...at least he's saying that to my face anyway. Now all my repeat blod work is back and is fine so now what? Limbo really stinks! But I guess the key here is to remember it's our bodies and we know better than anyone what is going on and we should seek answers. If we aren't getting them from one doctor and heaven help the one who treats me as if I am crazy, then maybe we need to move on.
Come here and vent find support, we are all in this together.
SAM
> I have been having neurological symptons for 6 years.
> The symptons started out as spasticity in my legs,
> numbness, tingling, twitches in my muscles. Then 3
> years ago I was diagnosed with a neurogenic bladder
> which I have to use a catheter to urinate. Five
> months ago I had optic neuritis in one eye. I did IV

> steroids for 3 days then did an oral taper of steroids
> for 2 weeks. The steroids helped and I feel better
> than I have in a long time. After doing the steroids
> my bladder got better. The doctor doesn't know if it
> was from the steroids or if it got better on its own.
> The problem is that every test that I have had except
> the bladder testing has been negative. I have had
> mri's, emg, spinal tap and because these are negative
> no one will dx me with anything but many times MS has
> been mentioned. I have been to 4 different
> neurologist and after the test come back negative they
> usually say they can't find anything wrong and say
> that I don't need to come back. I feel that I am
> losing my mind. If there is anything wrong than why
> are all of the test normal? Then there are other
> times when I say to myself there has to be something
> wrong because when I walk I always go to the left. No
> matter how hard I try to walk a straight line my body
> always goes toward the left. I have a great family
> doctor who tells me that I am not crazy and calls me
> every couple of weeks to tell me this. No matter how
> many times that I am told this I still doubt my mental
> health. The first neurologist that I went to had said
> that it was a conversion reaction which is when you
> have emotional issuses that you bring out on your
> physical body. I went to 4 different Pshychiatrist
> hoping that they could help and all of them said that
> it was a physical problem and they couldn't help me.
> After all of this I still feel that all of my symptons
> are in my head. Does anyone else feel the way I do?
> I am sorry to make this so long. Thanks for listening
> I appreciate it.

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