Hypo Plastic Left Heart Syndrome -- Sharing Hope..a safe place

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Date Posted: 06:24:39 09/28/04 Tue
Author: Naya Atherley
Subject: Hypo Plastic Left Heart Syndrome

My husband and I just found out that our baby is diagnosed with Hypo Plastic Left Heart Syndrome and also Partial Situs Inversus which means the babies stomach is on the wrong side. We just found out on Thursday September 16, 2004. I am already at 21 weeks at this point. When we had our initial ultrasound to find out what the babies sex was. I remember how excited we were. How quickly we were devastated by hearing from another Doctor who was on duty that day. Since your baby has these severe abnormalities you must get an abortion. I felt numb, hurt, confused, and upset all at the same time. I could feel the tears streaming down my face! The doctor asked me if I was okay, but I couldn't speak. My husband was of course shocked too. This is our first child together. I couldn't believe this was happening. At the time the only option we were given was to terminate the pregnancy. "How Cruel" I felt like at that point from hearing those words from the doctor. That the baby was already dead, like we didn't have any hope. That turned out not to be so once we met with the Specialist. Of course, it was still bad news that the condition of the abnormalities wasn't going to change. But at least I was going to be able to have the baby! The Specialist had told us that 90% of the babies with this abnormalities die. And with the other abnormality my baby would probably have a lesser chance. Even with surgery. The doctor's that would perform the surgery would technically only be "Practicing" on my baby so that they could use it for research the next time. But, even after hearing all of this my husband and I still have to meet with the "Pediatric Cardiologist" to see if there is any hope. I feel that life is fleeting but you must give it a chance. This is the main reason that I am keeping the pregnancy. My little girl "Liyah" deserves a chance just as much as any other baby. Who are the doctor's to tell me that I have to have an abortion! That's like taking the easy way out! I would never bend on this issue even if it meant my life was at stake.

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