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Wednesday, April 15, 19:22:31Login ] [ Main index ] [ Post a new message ] [ Search | Check update time | Archives: 12345[6]78910 ]
Subject: Re: Couldn't have - Can't have


Author:
Tara
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Date Posted: 09/12/07 3:50am
In reply to: Pat 's message, "Re: Couldn't have - Can't have" on 09/11/07 2:05pm

Dear Pat,

Thanks for your reply ( and everyone elses, too!)

Yes I was specific when I said "Rheumatoid disease". Not many people know this, I certainly didn't til I was diagnosed - but it's not always just "arthritis".
It's actually a systemic disease, it's pathology can be very similar to lupus - as in my case. It can affect any of the organs, as well as the joints causing excruciating pain and disability.
I know the drugs aren't good for me - but I promise you, the alternative has been far worse. I now have some movement again, and thus far have been willing to suffer through the side effects to hopefully put this disease into remission - the goal of the chemo. I will never be cured, but am willing to fight.

I visited my Doctor today and told him about the pregnancy. He told me to immediately stop taking the new chemo drug (lufluonimide) and has given me some form of powder to take over the next 8 days to flush my system of methotrexate. (Sorry! I don't have the prescription right here so I don't know the name)
He says when I visit my GP on Friday to book an ultrasound to see if the baby is in fact alive - so it sounds as though you are right, Pat, with regards to the baby being definitively one or the other. (Viable or not). However, as in all methotrexate literature, it warns of severe defects to the fetus)

I have been on a very strong dose of methotrexate for just on one year, so I would think my chances are slim.

However, I am feeling much better today as I finally managed to get some proper sleep after 4 days.

Thank you all for your kind thoughts and wishes. This has really helped.

~Tara

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