Re: Help!!! -- Manitoba CEDA

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Date Posted: 07:31:50 08/01/02 Thu
Author: Carolyn Bennett
Subject: Re: Help!!!
In reply to: Jill 's message, "Re: Help!!!" on 07:21:15 07/22/02 Mon

Jill

Thank you for your reply I appreciate hearing from you again. We are mostly in boxes and bags now and anticipating the movers in two weeks. The computer will be packed last so I have a bit of time left with it.

My husband suggested that I not use our military e-mail address for this type of communication, as I plan to join the listserve you spoke to me about in the future. He suggested that I get a yahoo account, which I did. I can now be reached at magmamum@yahoo.com.

Jill, I am scared to death about getting my boys lined up with good care once we move. So new into the diagnosis and we are moving to another province! The timing could not be any worse. The boys really want to reach out and meet someone in their age group with EDS. I will sign them up on the childrens and teens listserves as well and see how that goes. They are desperate to find out if they are 'normal', which is so hard for me to manage! I was hoping to make contact with someone when we got to Winnipeg. I may be able to make a small side trip to CFB Trenton en route, is that too far away for you to meet me there for the day? Talking to you on the phone is so helpful but meeting you in person would be fantastic! I just need to connect. I will try to call you just before we leave and see if I can make that side trip afterall.

Thank you for being there Jill, I don't know where I'd be without you.

Carolyn

>Hi Carolyn!
>
>It's good to see you here. I had no idea that you
>were moving when I spoke to you a couple of months
>ago. It is the military way though!
>
>I will forward to you, the names of doctors I have on
>my list. I hope your old e-mail addy will work until
>you sort out a new one, it sounds as though you are
>amid chaos right now!
>
>Be well and don't hesitate to contact me at any time!
>
>>Oh great. My sons were hoping to communicate with
>>someone their age so I guess they will just have to
>>wait until you return.
>>
>>I was in touch with Jill months ago when we needed
>>someone to make this diagnosis and she sent us to our
>>doctor here, I hope she can do this again for us in
>>Winnipeg.
>>
>>Thank you anyway.
>>
>>Carolyn
>>
>>>Hello Carolyn,
>>>
>>>I must say that moving can be a difficult task but to
>>>have the worries about finding doctors that can help
>>>you and understand your condition is just an added
>>>stress.
>>>
>>>Unfortunately I am not in Winnipeg right now, I am
>>>away on an extended vacation but will do my best to
>>>help you. I do not have access to my physicians list
>>>but I am going to direct you to Jill Douglas-Hand the
>>>President and Founder of CEDA. She is a wonderful
>>>woman and will be more than willing and able to help
>>>you as she has a copy of the Manitoba Physician List
>>>as well as a lot of other contacts and information.
>>>You can email her at office@ceda.ca
>>>
>>>I must warn you that right now Manitoba is in a
>>>serious shortage of General Practitioners and you may
>>>have some difficulty finding one right away. Please
>>>do not be discouraged by this as I am sure you will
>be
>>>able to get a regular GP within a reasonable amount
>of
>>>time, if you do run into medical problems you can
>>>visit any of the emergency departments.
>>>
>>>I will continue to check the Bulletin Board to see
>how
>>>your progress is going. Good Luck and have a safe
>>>trip to Winnipeg.

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