Re: cystic hygroma-hydrops any help please!! -- Poor Prenatal Diagnosis-Advice And Support

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Subject: Re: cystic hygroma-hydrops any help please!!

Author:
Micki King

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Date Posted: 15:02:49 03/20/03 Thu
In reply to: Carole 's message, "cystic hygroma-hydrops any help please!!" on 02:03:32 01/19/03 Sun

>Hello,
> My sister in law, Jill and brother in law, Ron,
>found they were expecting.. which was such a joy.� But
>unfortunately a few weeks ago (during a sonogram) they
>found complicatons with the baby.� After seeing a
>specialist and other tests they were informed that the
>baby
>was diagnosed with Cystic Hygroma.�� This week after
>the last sonogram it showed the baby was surrounded by
>fluid.� The baby's head is lemon shaped due to the
>fluid pressing against it's temples, there is fluid in
>the lungs, the kidneys are under developed and
>they feel it is best for them to just terminate the
>pregnancy.
>�� Ron is a strong Catholic and very Pro Life,�
>Jill, I know
>feels the same way.. but the medical field keeps
>telling her
>to terminate the pregnancy and she is being torn now
>with
>what to do.� After reading and hearing of different
>cases
>it seems there still can be a small ray of hope that a
>miracle
>could happen and the baby be normal.. but in either
>case..
>I'm very worried about Ron and Jill now, being torn
>with
>what to do or not do.� Jill has gradually been closing
>up
>and not answering the phone.. going out to see people
>and now wants to go away "alone" for a few days to
>think things over.� Which I don't think is a good
>idea..
>�� Ron and Jill are both in their early 40's.�
>They just
>got married Feb of 2002, this is both their first
>pregnancy.
>They are wonderful people.. very caring for others and
>pretty much strong stable people.� But I am as I said
>before
>worried about Jill's mental well being.� She has
>"alot" to
>think about and has had mostly negativity thrown at her
>at this point.� If there is anything you could pass on
>to
>possibly help them in this situation, I'd be ever so
>grateful.
>Thank you so much for your time..� Take care!�
>God Bless!!
>
>�� Carole Eichner

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[> [> Subject: Re: cystic hygroma-hydrops any help please!!

Author:
Yvonne
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Date Posted: 19:43:09 08/14/03 Thu

Hello,
I am a somewhat healthy 25year old female who has lived with Cystic Hygroma all my life. I can't say it was easy! Kids make fun, missing alot of school, hospitals. Other kids could never touch my toys because any germs could make me sick, no sports because I might get hurt and hemerage. As I got older I learned to hide the physical part of cytic hygroma and fit into society just fine. Now a days people can't tell even if they tryed. If they want to abort the baby because it's brain damaged, go for it. But to do it because it's not considered normal to Dr's or society, then I say who are they to play God!

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[> [> [> Subject: Re: cystic hygroma-hydrops any help please!!
Author: jeremiah thomas [ Edit \| View ]	Date Posted: 21:44:40 08/17/03 Sun hey thats grate to hear my first child has cystic h.it is a grate releafe to to know that some body has lived with it. that just makes my hopes even higher im so glad that i checked out this web site tonight thank you for what you wrote jeremiah & fam. [ Post a Reply to This Message ]

[> [> Subject:

Re: cystic hygroma-hydrops any help please!!

Author:
Cheri
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Date Posted: 19:24:00 09/13/03 Sat

I have to say, God does work! Keep the prayers coming. I will add your family to my prayer list! We may not understand it, but he does.

I was born with the birth defect called cystic hygroma too. Dad was in the Navy and I was born in Iceland, then sent to Bethesda Naval hospital at two weeks old. Mom and Dad were told three things (roughly): if you believe in God, pray. Have your daughter baptized; she does not have long to live. She may not live through this. Things went well that day. Then when I was 15 I had reconstructive surgery. I now have a z scar on my neck from a french type of recnstuctive surgery. I have to say I had the best doctors in the world!!! Well besides the original OB/GYN doctors that delivered me..but remember..those type of doctors do not know any better!

I am 29 now, and enjoy life grandly! I am the only one besides Mom that really notices the scar on my neck. Sometimes I catch people staring in line at the store or such and I stare back and ask if I can help them...then most timess proceded to tell them I was in an awful mugging, the gang sign was a z. Myself, well..humor works well for me, why roll around in the sadness of it. I am such a stronger person because I have gone through this.

Some people that were born with cystic hygroma can not talk clearly or hold they head up. I hold my own head up and speak pretty well. In fact so well, I am told to put a cork in it often. Enough about me, email me, I can listen as.

One thing...that song of Natalie Merchant..Wonder...It is as if it is about me...listen to it..."Fate smiled at destiny!" The fuel to survive is there, just look around...Shalom and God Bless!

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[> [> Subject:

Re: cystic hygroma-hydrops any help please!!

Author:
grecia
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Date Posted: 09:47:02 09/04/05 Sun

i was fithteen when i got pregnut and my doctor said that my baby had cystic hygroma and i prayd so much and i resived a dream that my baby was going to be ok but he said the best thing to do was to abort so i did know i realize a made a big mistake but he never gave my the choice of having the baby my choices where abort or abort so know i don't know what to do.

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