Re: cystic hygroma-hydrops any help please!! -- Poor Prenatal Diagnosis-Advice And Support

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Subject:

Re: cystic hygroma-hydrops any help please!!

Author:
Shellie

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Date Posted: 10:46:36 04/09/04 Fri
In reply to: Brad 's message, "Re: cystic hygroma-hydrops any help please!!" on 09:30:06 04/08/04 Thu

Brad,

I'm really sorry to hear that you and your wife were given a poor diagnosis...I'm sure you are devistated. I hope you don't mind me asking, but was your baby diagnosed with both Cystic Hygroma and Hydrops?

Please feel free to post here as often as you'd like. By the way, your not the only male poster here. This situation is difficult for men and women, but you are right, your wife has more at stake. Going through a termination is a traumatic experience. I will post more once I know the exact diagnosis.

You and your wife will be in my prayers~

Shellie

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Author:
Monica
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Date Posted: 06:42:59 04/10/04 Sat

Hi Brad,

I'm sorry you and your wife were given bad news about your baby. I'm wondering, like Shellie is, if you are dealing with hydrops, or just the hygroma, or both?? It is true that the presence of both this early gives a grim prognosis. But, that still doesn't mean that ending the pregnancy is a good course to follow -- esp if your wife is opposed. It's a terrible blow to have the bad news to beging with, but then to be asked to do something that you are opposed to . . . that's a great way to turn a sad situation into a tragic one.

There is a long and very informative thread on babycenter.com -- it is hundreds of posts long going over several months. It is mainly about cystic hygromas, though I think some of the babies may have had hydrops, too. All of the women continued their pregancies. Some of the babies did indeed die in utero (which is very sad), but others did not. In some cases, the hygromas resolved. It is definitely worth it for you to take a look there:

http://bbs.babycenter.com/board/pregnancy/prenatalhealth/3366/thread/261654

I hope that helps some. Please let you wife know that if she needs some extra support, we are here -- she can come onboard and just "talk" if she wants.

I hope we can hear from you again, and of course, I hope that the news gets better for you, too.

Sincerely, Monica

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