Re: Cystic Hygorma -- Poor Prenatal Diagnosis-Advice And Support

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Subject: Re: Cystic Hygorma

Author:
Lacy

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Date Posted: 12:27:22 01/13/05 Thu
In reply to: Lisa 's message, "Cystic Hygorma" on 07:58:21 03/19/03 Wed

I had my ultra sound at 18 weeks and found out that my baby had cystic hygroma. I am not sure what to do, my doctor told me that I could abort the baby now, or I could just go into labor, which would happen in the next 4 weeks. I am trying to find good specialist to get second and third opions but cannot find anyone. So if anyone as any ideas or information, please e-mail them to me as soon as possible. Thank you so much

Lacy

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[> [> Subject: Re: Cystic Hygorma

Author:
Monica
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Date Posted: 06:41:17 01/17/05 Mon

Hi Lacy,

I'm really sorry to read about your baby and the cystic hygroma diagnosis. I'm trying to figure out why your dr has given you this 4 week window -- are they saying that your baby's system is failing in some way? Otherwise, that sounds pretty strange. I'm very happy you are getting a second opinion. If you can email me, I can give you the email/contact of a mom who has a 19 yr old with cystic hygroma. They discovered her daughter's hygroma just barely prenatally -- when they did they delivered her right away (but this was late in pregnancy and baby was viable) so they could treat her. She had surgeries to remove the hygroma -- it was apparently quite large and embedded. It was touch and go with her baby early on . . . but she made it! She lives not too far from me and either just started attending college/university or has for a year (I haven't been in touch for over a year so I'm not quite sure what she's up to).

Anyway, apart from giving you some hope that the CH doesn't always have to end in death, I thought maybe the mom might be able to help you find a specialist . . .

Hope to hear from you!

Sincerely, Monica

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