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Subject: Re: Cystic Hygorma Author: Ashley [ Next Thread | Previous Thread | Next Message | Previous Message ] Date Posted: 21:00:34 03/22/03 Sat In reply to: Lisa 's message, "Cystic Hygorma" on 07:58:21 03/19/03 Wed Hello. I will admit right up front that I don't know anything of this particular condition. However, my son (now 10) was born with spina bifida and all the goodies that come with it and I tell you it can be quite frightening, esp. in the beginning. However, as having been on this road for nearly 11 years now, I want to tell you from experience that you are about to embark on a wonderful, challenging, heartbreaking journey in your life. It is the beginning of some of the most trying, yet beautiful areas of your life. From my experience and having spoken to hundreds of other parents raising children with disabilities, these children are nothing short of blessings. In the beginning, you may mourn for the child that "might have been", but let me tell you, reality is better. These kids truly change your life for the better. I realize and know that this seems unfathomable to many, esp. in the beginning, but I promise it does come! You know, my son has muliple medical problems and more than his share of surgeries, etc. But I tell you, in all my years I've never met a more strong, willful, humurous caring person in my life. (Except for other children with disabilities). They are truly amazing gifts. Please, take the time to realize that while your child may have a disability of some kind, this is still your baby! This child, like any other will need love from his/her parents, understanding and compassion, just as any other child. God Bless, Ashley [ Next Thread | Previous Thread | Next Message | Previous Message ]

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[> Subject: Re: Cystic Hygorma Author: Lisa [ Edit | View ] Date Posted: 07:37:28 03/27/03 Thu I am sorry that I did not read my emails earlier. Thank you for all your prayers and positivity! Well on Monday we were told that we are going to have a girl with TS. I have to tell you that I was so releived when it wasn't anything more severe. Yes, she has a chance of developing serious problems, but I have to keep the faith and hope that this is the only curve ball that will be thrown at us. I have been doing a lot of reading on TS and there are a number of woman that have this disease, most of them don't even know that they have it. I had an ob appointment yesterday and she looks fine. The doctor said she was growing just fine. The hygroma was still there but smaller. I would love to update you on her road to the real world. If you could email me to my yahoo address that would be great! Thank you all for the support! LGonzalezNenadich@yahoo.com [ Post a Reply to This Message ]

[> [> Subject: Re: Cystic Hygorma Author: Melanie [ Edit | View ] Date Posted: 13:51:11 03/27/03 Thu Hi Lisa, I am glad to hear that the news was not all bad. I have since done some reading on TS as well, and it seems very manageable for the most part. The fact that the hygroma is smaller is very good news indeed! I would be delighted to hear about her progress. I will try to e-mail a bit later today when I get a chance. --Melanie [ Post a Reply to This Message ]