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Subject: Re: cystic hygroma-hydrops any help please!! Author: megan [ Next Thread | Previous Thread | Next Message | Previous Message ] Date Posted: 07:17:44 04/30/08 Wed In reply to: Nicole 's message, "Re: cystic hygroma-hydrops any help please!!" on 03:51:16 11/28/03 Fri I am currently 19 weeks pregnant. My baby girl was diagnosed with cystic hygroma with hydrops on ultrasound last week. She alos has an omphalocele and an abnormality in the ventricles in her heart. She has been given 0% chance of surviving past the next 30 days. We have come to terms with the diagnosis, but the waiting is killing me. We have chosen to let God take our angel to heaven whenever he see fit. I was just wandering if anyone had any advice as to how to get through the waiting period. Thanks. [ Next Thread | Previous Thread | Next Message | Previous Message ]

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[> [> [> [> [> [> [> [> [> Subject: Re: cystic hygroma-hydrops any help please!! Author: Rebecca (Heartbroken) [ Edit | View ] Date Posted: 06:35:02 05/20/08 Tue I am now fifteen weeks into my fourth pregnancy and have been told by my consultant that my baby has both cystic hygroma and hydrops, I NEED to know that some babies do survive this and don't suffer. My consultant told me that babies that present this early on with these conditions rarely get past twenty weeks of pregnancy, how can that be true when its heart was beating so strong on scan yesterday??? I am going for CVS in two days, I am devastated.

[> [> [> [> [> [> [> [> [> [> Subject: Re: cystic hygroma-hydrops any help please!! Author: Amber (Sad) [ Edit | View ] Date Posted: 20:43:33 06/12/08 Thu I went for my 1st pregnancy check up today and had an ultrasound. I am 11 weeks and 4 days and my baby was diagnosed with cystic hygroma and hydrops. We are devastated and need more answers. I am confused. We had lots of blood drawn today and my CVS test is scheduled for Monday at 10:15. I am a wreck!! My baby was moving around like crazy and had a strong heartbeat. I keep staring at the ultrasound pictures and cry like crazy. I am falling apart but need to stay strong for my 4 year old little boy. My baby had 4 mm extra fluid in its head and belly. We even got pictures of the face and everything looked good to me!!! How can that be? I can't handle waiting 7-14 days for results. Please help and pray for us.

[> [> [> [> [> [> [> [> [> [> Subject: Re: cystic hygroma-hydrops any help please!! Author: Bernice Marley (hopeful) [ Edit | View ] Date Posted: 13:24:04 12/26/08 Fri I work with a woman who had a child with cystic hygroma with hydrops. the child is now in the first grade and, except for some facial distortions, the child is fine. she chose to not terminate her pregnancy and gave it to God. There is always hope and I depend on Miracles.