Re: cystic hygroma-hydrops any help please!! My story. -- Poor Prenatal Diagnosis-Advice And Support

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Subject: Re: cystic hygroma-hydrops any help please!! My story.

Author:
Brandie

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Date Posted: 14:49:11 05/19/07 Sat
In reply to: Monica 's message, "Re: cystic hygroma-hydrops any help please!! Hello Brad!" on 23:32:35 05/04/04 Tue

I am posting this for anyone who is going through something similar to what I have been through. My husband & I have one son & he a thick nuchal fold at my 19 wk u/s, so I did an amnio to confirm he was healthy. All turned out fine & he is now a healthy 3 � year old.

After 2 losses & IF treatment, my husband & I were so excited to get pregnant after IVF #2. In order to avoid an amnio I decided to go in for a first trimester screen to make sure all was well. I was devastated to learn that the baby had a borderline nuchal measurement (2.8-2.9) and worse yet, they saw a �cystic hygroma�. The perinatologist who came in told me, �This does not look like a healthy baby�. With a statement like that, it was hard to hold on to hope but I did a ton of research so I would be prepared.

I learned 50% of babies with cystic hygromas do have chromosome abnormalities. I also learned, you need to go in for a fetal echocardiogram (heart u/s) to make sure there are no heart problems. We elected not to do a CVS since it was a little riskier, but did decide to do an amnio at 16w5d. We received our results back & we are having a healthy little girl. We still need to have more detailed u/s on the heart, but at my last u/s they said it looks just perfect. Also, the cystic hygroma appears to be diminishing & right now it just looks like a thickened nuchal fold, just like my son had. We did not have any hydrops or other abnormalities noted on any u/s.

I hope my story can give hope to others out there faced with this diagnosis for their little one. There is hope that all can turn out OK.

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