Re: cystic hygroma-hydrops any help please!! -- Poor Prenatal Diagnosis-Advice And Support

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Subject: Re: cystic hygroma-hydrops any help please!!

Author:
Julie (Praying)

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Date Posted: 10:50:14 07/08/08 Tue
In reply to: Nicole 's message, "Re: cystic hygroma-hydrops any help please!!" on 03:51:16 11/28/03 Fri

Hi, I just turned 25 weeks this Sunday and our daughter has Turner's Syndrome along with the cystic hygroma and fluid both around her heart and her belly. Anyway, June 17th we went to have a level 2 ultrasound done, and the doctor told us she now has the hydrops. All of this is very frustrating, but I believe God has a plan. My husband and I aren't giving up on her. Good luck to everyone.

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Re: cystic hygroma-hydrops any help please!!

Author:
Stephanie (Pain)
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Date Posted: 16:10:37 09/18/08 Thu

I am 19years old and 14 weeks pregnant. When i was 10weeks pregnant the doctor told me they saw a abnormal neck fold on the baby, but it sometimes goes away and since the baby is perfectly healthy other than that we should not be too alarmed. I went back 3 weeks later to find out that the baby has not progressed and the "neck folds" are now Cystic Hygromas, and there is a chance that the baby may have turner's syndrome. I was with a midwife group and they sent me to a Hospital where they specialize in deformalities in early pregnancy (savannah perinatology). So Today i just had by appointment and i went in very confident that everything would be okay. My ultrasound showed that the Cystic Hygromas have spread from around the neck now to around the tummy. The doctor says that there is a 99% of the time a baby like this just gets worse. So i had amniocentesis done and more blood drawn. Im just waiting for results. but even if they do come back with nothing is wrong, the doctor still said this baby would not survive. unless some miracle just happened and the symptoms got better. I met with a genetic counselor and she smoothed some things over with me. but i know im never going to be okay. this is my second pregnancy, my first one was around october last year and i miscarried at 5weeks. Its just so hard, im so young and i know i have pleanty of time, but when im haveing problems this early in life with pregnancy it just seems that its always going to be that way. I have been looking for some story of a similar baby who is fine, but i have yet to found one. I hope some of my information can help somebody. All i can say is just pray, that is all you can do.

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