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Subject: Re: cystic hygroma-hydrops any help please!!


Author:
Sara (Emotional)
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Date Posted: 13:49:55 12/30/08 Tue
In reply to: Nicole 's message, "Re: cystic hygroma-hydrops any help please!!" on 03:51:16 11/28/03 Fri

Hello everyone...I am 16 weeks along right now. I just got the news about 2 weeks ago. In a way this is a great site and has alot of real life info on it. Then again in the same way I don't feel much better reading the stories b/c there haven't been any good out comes. Like many of you I have decided to all god to choose when he would like to take our Caleb to be our angel, but you are ALL right it is an emotional rollercoaster waiting for it to happen. Not knowing is the 2nd hardest part. I am just hoping he is not in any pain. How do you get passed something like this??? It is every parents worse nightnear!! I started contracting on the 23rd and part of my water came out the day after Christmas. Within a week Caleb as gotten alot worse with his fluid in his belly. My heart is breaking and I just want some glimps of hope. No matter what I read or what the doctors say I still am holding out that miracle that everything is gonna be ok. My 6 year old daughter is taking this very hard too. It has been very hard trying to explain this to her when I don't understand myself. Well I wish you all the best and I will be praying for all the babies and families that have to go through this. If anyone has any advise please I could use all the advise and support I can get. Btw I have chosen to have a serive for Caleb if or when he does pass...what did or do you guys plan to do?? Well anyways god bless...stay strong!

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[> [> [> [> [> [> [> [> [> Subject: Re: cystic hygroma-hydrops any help please!!


Author:
Unsure
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Date Posted: 11:29:37 07/16/09 Thu

I don't know if this site is used anymore, but I am 21 weeks pregnant and found out last week that the baby has cystic hygroma and hydrops. We are awaiting results of the amniocentisis to find out if/what chromosomal abnormality is present. The doctors say the baby will not survive to term, but even so, I am unsurea about terminating it. I would rather that the baby live and die naturally. How many weeks along were you when the baby's heart gave out? I would have liked my baby to live a full and beautiful life, but living every day not knowing whether it is living or dying is terrifying. Thank you for your honesty & hope.

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