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Subject: Re: cystic hygroma-hydrops any help please!!


Author:
Monica
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Date Posted: 00:07:37 11/05/03 Wed
In reply to: Rachelle 's message, "Re: cystic hygroma-hydrops any help please!!" on 19:44:08 11/04/03 Tue

Wow, Rachelle, I don't know why some of those drs' even go into ob practice -- so me don't seem to care about women *or* babies . . .sigh. I'm sorry it was such a discouraging experience and that they gave you no good news.

Please know that we are on your side!! Your baby is a somebody important and so are you. Hugs!!


Sincerely, Monica

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[> [> [> [> [> [> Subject: Re: cystic hygroma-hydrops any help please!!


Author:
Monique Gilomen
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Date Posted: 17:24:49 04/15/04 Thu

Yesterday at my visit with the perinatologist I learned that my baby has a cystic hygroma, with a nuchal translucency of 4.2 mm (I am 10 weeks, 4 days), which the doctor claims is very large. I was given what seems to be the typical counseling, complete with "options." When I told the doctor that that was NOT an option for me, he said, "so you will just wait until the spontaneous demise of the pregnancy?" Now the research I have done (correct me if I am wrong) shows the possibility of spontaneous recession of the hygroma, and that no one really knows the true fetal mortality rate, because almost 90% of those diagnosed choose to terminate their pregnancies. How sad! I have opted to wait until I am further along for any kind of invasive testing, since the risk of miscarriage is still pretty high from the procedures alone.

I am at peace with whatever the Lord sends my way, but the prognosis seems grim at this point. I will wait and see what the next ultrasound shows.

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