Involving patients and the public (Staffordshire University) -- CAIT discussion forum

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[> Re: Involving patients and the public (Staffordshire University) -- Peter Jones, 01:20:48 12/13/03 Sat

Dear Elizabeth and CAIT,

(sorry this is a long, but hopefully relevant post, that may be the ramblings of someone obsessed by an over-valued idea - you decide!),

I work in the UK as a community mental health nurse/Team Leader with older adults.

In order to involve people (interpersonally, locally, nationally and internationally) a key problems we face is the need for a framework that:

* disarms yet empowers
* is simple yet complex
* has local and global applicability
* applies to individuals and populations
* is neutral or activist according to situation/agenda
* able to represent and disseminate
* engages and educates
* transcends beliefs and borders...

Surely, no such framework exists?

While not a panacea in itself, I would like to suggest an idea that may be of interest to you and the CAIT community.

Developed in health and social care this tool has potential far beyond, given the complexity of the problems we now face. Introducing:

Hodges' Health Career - Care Domains - Model (h2cm)

http://www.p-jones.demon.co.uk/

h2cm can help map health, social care and other issues, problems AND solutions, taking a situational and multi-contextual view.

e.g. ACTIVISM, AUTONOMY, CONSENT, EVIDENCE BASED HEALTH & SOCIAL CARE, ECO-SYSTEM HEALTH

across four knowledge domains:

* Interpersonal;
* Sociological;
* Empirical;
* Political (Autonomy).

The above domains are derived from two continua:

INDIVIDUAL <--> GROUP
and
HUMANISTIC <--> MECHANISTIC

(for a diagram please see)

http://www.p-jones.demon.co.uk/hcm.htm

Please find our aims and objectives listed at:

http://www.p-jones.demon.co.uk/aims.html

As I'm sure you are aware in health we are still trying to be holistic, combining the mind and body (and remain poor at this?). Also trying to integrate - teams, services, policies and records.

h2cm has enormous potential I feel, as we seek to integrate all the above.

It is getting harder to balance;

1. the demands on health and social care workers as policy (quite rightly!) emphasizes patient choice, carer's rights, raising public (and political) expectations, with -
2. the training, supervision needs, and caseload management of a *fixed number* of professionals.

In the developing world h2cm becomes a tool to represent the activist agenda. Having an agenda is not enough, it must be disseminated, subjected to critique, to prosper or wither - but given its day. In the developed nations the h2cm may actually highlight aspects of underdevelopment (CAIT!!). Of course we are favoured - being able to speak of 'health policy' and 'holistic care', but perhaps this is presumptuous of me?

An effort to justify this scope is made at:

http://www.p-jones.demon.co.uk/hcmholis.html

As this community will recognise, we need to model the issues above and recognise individual rights, concordance in treatment, not just compliance.
************************************
Involving the public though MUST have its 'price', however;
the responsibilities of being a citizen must be reinforced in education...
************************************
the health and economic costs to all (globally)-
of needs fulfilled for the few (locally/nationally).
************************************
Problem solving requires (demands!) the ability to relate the micro to the macro, essential in understanding the subtle relationships between individual health, ecosystem health and the global environment.
(Global warming IS killing people).

The h2cm should not be restricted to health and social care. Health and social care governance is a keystone of global governance.

http://www.p-jones.demon.co.uk/inflevel.html

Our links pages may be of particular interest to readers:

http://www.p-jones.demon.co.uk/links.htm

http://www.p-jones.demon.co.uk/linksii.htm

Thank you for your consideration, which is greatly appreciated.

Yours sincerely,

Peter Jones
Team Leader & h2cm webmaster/Contributor
England