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Date Posted: 04:00:17 03/22/12 Thu
Author: Shanean Austin
Subject: Re: Not the news I was hoping for........
In reply to:
Ravenbeauty
's message, "Not the news I was hoping for........" on 08:40:56 03/17/12 Sat
Dear Ravenbeauty,
I am so upset to hear about your latest news. I am happy that you are in contact with Sloan. Look into flaxseed oil krill oil, vitamin d(mega doses@) and calcium. These are supposed to be good for reasr cancer. These days they are saying that aspirin fights tumors? And prayer helps. You are in my thoughts and prayers. Thank god for the love from your readers!!!!
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Update.......................................................... -- 
Ravenbeauty, 06:07:48 03/22/12 Thu [1]
Hey Guys,
I have the scans scheduled to see where else the cancer has gone (besides the obvious areas that we are already aware of) all set for early next week. Meeting with a new surgeon next week as well since the one I had been using is on maternity leave and her partner is NOTHING like her. Her partner said something that for me is simply unforgivable. No matter where it's gone on the inside, I certainly expected her to remove the growing lesions, which are starting to ulcerate and cause pain under the left part of the incision. She told me that she couldn't see the point in doing another recession because I have Angiosarcoma. In other words, you are a dead girl walking so why bother. That in of itself had me so upset that I didn't know whether to cry or scream. Her partner would have never said that to me. She was wonderful and stood by me in so many ways, but she is on maternity leave. My heart sank when I first learned that she was unavailable. She was someone who would have stood by me to the end.
Even if I only have a short time left, you don't leave Angiosarcoma on the skin as it gets black, and causes gangrene. It's a horrific situation and whether it's inside or not, I should not have to endure that additional pain and suffering. The other doctor who I adored would have told me to fight and tried to give me hope even though this situation is as dark as it gets, but her partner's words were cruel and lacked even an ounce of compassion (they are night and day). Meanwhile, I am watching this stuff grow again, knowing that it's spreading even more so, and trying to keep my wits about me at the same time. Hoping that the surgeon I am meeting with doesn't feel the same way she does. If not, I will keep going if I must until I do find one that will remove this, but I am racing against time, and the whole thing has been nothing short of a nightmare. I have spent hours trying to reason what is happening to me. Why this had to be Angiosarcoma of all cancers. It's such a grim and hopeless cancer. I am just so angry and so scared and so thoroughly disgusted at this point that there are no words strong enough.
Please know that I am not just lying down to die (no matter what they tell me). I am trying alternative treatments that I have been reading about although I am fully aware of the odds (painfully so). Right now, everything is just a blur of tests, trying to get some rest, and just finding a way to push through. Trying to stay away from crowds, anyone that has recently been on an airplane, and anyone sneezing or coughing because if I get sick now, I won't have much of chance to do anything with my immune system being the way that it is. Tired, angry, scared, and just plain numb. I have always shared with you, and that will never change. I am so grateful for your incredible words of love and hope out here. I usually try to answer each one of you, but as you know, circumstances have made this harder to do these days. No matter what happens to me, please never give up on this fight. This fight is a big one. It's bigger than saving just one show. It's preserving a very relevant genre that is vitally important on so many levels. I love you guys so much. I will keep you posted when I can.
Last edited by author: Thu March 22, 2012 08:34:40
Edited 1 time.
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Re: Update.......................................................... -- Mary, 07:39:40 03/22/12 Thu [1]
Bless you, Raven.
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Re: Update.......................................................... -- Taelyn (Nobody loves U more than GOD), 16:41:16 03/24/12 Sat [1]
Sadly many Doctors "Mean well" But sadly they live by statics and odds.. and Their God is the Insurance CO.
Know you have to understand that whatever happens to you they get to just go on with life, and while some will tey harder than others at the end of the day.. no matter what Life does not change for them.
So You have to FIGHT BACK.. DEMAND they do more, Research EVERY option, And tell tem You are not intersted in hearing why something wont work.. You want them to try anyway, Remind them they made an oath.. Shame them if needed.. Ask them how far they would go for their loved one, or themself, and why should you get less..
Never give up.. And learn EVERYTHING you can.. Information is power.. empower yourself.. In all the world there must be a surgeon who can do what you need, Sometimes such Doctors will do things just to prove they can.. Otherwise get your friends to start a financial aide program. get it on the Media, have them make a cviral Video.
NEVER STOP fighting.. or Believing !! God Bless ..
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Re: Update.......................................................... -- An_Admirer, 17:44:49 03/30/12 Fri [1]
I really am hoping for the best. You don't know me at all, but I really hope there is some path you can navigate through this and emerge on the other side.
Best wishes to you and your family.
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Re: Update.......................................................... -- Denise, 07:51:00 03/22/12 Thu [1]
Stay tuff......prayers coming ur way!
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Re: Update.......................................................... -- Alexa (Keep the Faith - God is Able), 08:08:10 03/22/12 Thu [1]
I don't know what your faith is but just know this....God is able to do exceeding abundantly above and beyond what you can ask or imagine. He is the giver of life - not the taker. God is a healer and don't ever doubt it. He delivered from son from the brink of death when the doctors had given up on him. He is 13 now and healthy and whole. God is bigger than man and his plans. You will live and not die and declare the works of the Lord. We are praying for your miraculous turnaround in your health. Take it by faith.
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Re: Update.......................................................... -- Meredith (Encouragement), 09:35:07 03/25/12 Sun [1]
God is indeed the giver of life. I was healed of cancer five years ago. I put my trust and faith in Him.He is the one who died for us and arose on the third day. That isn't just Bible, it is history!!!Ask Him to give you faith and strength to let Him help you. I am praying for you.
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Re: Update.......................................................... -- Jan Johnson (Loving Support), 08:16:32 03/22/12 Thu [1]
Dear Raven,
We are all here to put our arms around you spiritually but do you have family & friends who are physically there for you? If any of us can help let us know.
Jan
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Re: Update.......................................................... -- Shanean austin, 08:19:16 03/22/12 Thu [1]
Oh heck no. I hate do ties like that!! You keep fighting until u can no more!! Let me tell u all doctors are not alike. You find another who will treat u with the dignity u deserve. You always have to fight for yourself because no one will love you like you love yourself. You just keep on gOing to the next doctor. Don't let the doctors Play god!!
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Re: Update.......................................................... -- Brinard, 08:32:02 03/22/12 Thu [1]
Love you too Raven, still in your corner always, praying and decreeing and declaring! You ARE next in line for a miracle.
:)
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Re: Update.......................................................... -- Shanean Austin, 08:36:09 03/22/12 Thu [1]
Just remember there are doctors who are willing to go the extra mile!! Also Chinese medicine works along with yoga and acupuncture. Please take vitamin c and the megadoses of vitamIn d like 5,000 iu and up and Calicum at least 1,000 Mgs per day there is proof now that helps in the fight against cancer but the docs do not tell u this. My husband takes about 9,500 iu of vitamin d alOng with Calicum and other vitamins. The docs can't believe how well he is doing but most docs do not tell u about vitamins. His nurse who works with his doctOr( the doctor does not believe in Alternative meds but the nurse at her side does. Go figure). My husband says he will continue to take these vitamins because so far so good.
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Re: Update.......................................................... -- Angie Smith, 08:59:28 03/22/12 Thu [1]
Still praying You are such a fighter. I had a Dr say something bad to me once and it took me 11 years before I could go to one. When I found mine and told her she said you should have looked him in the eye and said and you are being an asshole. Find a good one who will fight with you just as hard. Love and prayers Raven
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Re: Update.......................................................... -- mmm, 09:59:18 03/22/12 Thu [1]
Raven,
Please try juicing or researching the gerson therapy. It is a very credible alternative. Thank you for everything. Sending you healing vibes
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Re: Update.......................................................... -- AEH, 11:30:41 03/22/12 Thu [1]
My dad had stage 4 lung cancer and was told he did not have much time left by his doctors. He lived for 7 years. He swore by this stuff I recommended to him called "Flor essence" tea. You can get it on Amazon or any HFS. Keep your spirits up, avoid sick people, as you said (SO IMPORTANT) and know that your work and words have been incredibly appreciated.
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Re: Update.......................................................... -- Anonymous, 12:26:26 03/22/12 Thu [1]
Raven, there has to be someone who can recommend a top notch surgeon for you. There are so many good doctors out there. A friend, a neighbor, or someone in your family who has a good family medical doctor can recommend a good reputable surgeon. Even if you have to call and ask at a hospital to recommend a good surgeon and who has a lot of years of experience and has a good bedside manner. Whatever it takes just pick the phone up until you are satisfied and you will know it in your gut.
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Re: Update.......................................................... -- Shocked at idiot doctor, 12:33:35 03/22/12 Thu [1]
I would like to personally go kick that doctors rear for even letting words like that come out of her mouth. How dare someone tell you that you are not worth it. YOU ARE WORTH THE FIGHT, you are worth standing by and doing everything you can for. YOU ARE wonderful and that doctor has a lousy bedside manner. SHAME SHAME SHAME, someone needs to report that doctor and prevent them from working with cancer patients. Or people in general for that matter. What kind of crap is that. Get angry, get pissed off, and fight. Go to whoever you need to, until they meet YOUR needs and not theirs.
Huge huge hugs from all of us here. Like I've said before- soaps be damned, we are all here for you.
We are so proud of you for being the kind of woman you are. It's why we first started coming to you for scoops- because you care. Well.... so do we. Don't give up, GET MAD!! :)
We all love ya-
hugs
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Re: Update.......................angiosarcoma Inhibitors -- Shanean Austin, 17:10:55 03/22/12 Thu [1]
Raven Beauty has any of your doctors talked about angiosarcoma
Inhibitors. Drugs that stop the grow of angiosarcoma????
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Re: Update.......................................................... -- JHurley, 21:43:27 03/22/12 Thu [1]
Stay strong and try to be positive--and know that you are so very valued and loved in this world, Raven.
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Re: Update.......................................................... -- Ballerina (Dancingw/defiance), 22:33:41 03/22/12 Thu [1]
My flip calendar for today says "Pray. Pray. And then pray some more." Know that you are being held up. Every day from now on shows that you are willing and able to defy the odds that this is a hopeless battle. It is not. My dad survived an extended period with bladder cancer (six months turned into three years), and every day was a blessing. We are in this fight with you, darlin'.
Love and hugs for you.
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Re: Update.......................................................... -- Daryl (angry), 22:47:45 03/22/12 Thu [1]
I wish I could slap that doctor upside her (?) head ... what ever happened to compassion? If anyone ever deserved a miracle, its you ...
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Re: Update.......................................................... -- wherly, 03:02:22 03/23/12 Fri [1]
There's one Dr. that needs their license revoked. Just remember you are Fearfully and Wonderfully made, and you have the right to be treated with dignity and compassion by your Dr. Your health and well being is the whole purpose of their job, to CARE for their patients. I lift you and your loved ones up in my prayers, may the Lord give you strength and peace through this horrible journey.
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Re: Update.......................................................... -- MBmomof3 (hopeful), 03:10:09 03/23/12 Fri [1]
Raven,continuing to keep you in my prayers. Sending light and love your way. I too have had some very scary and negative experiences with doctors, so I can relate to that. Keep looking until you find the right health care providers who treat you with the respect, dignity and compassion you deserve. You might try contacting your health insurance provider or a support group that has a patient advocate. they may be able to connect you with a doctor(s) who would be a better match for your needs. Stay strong.
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Re: Update.......................................................... -- llanviewlovely, 03:21:45 03/23/12 Fri [1]
Raven, I am OUTRAGED that some unfeeling heartless doctor talked to you like that, they should be ashamed of themselves! I really don't understand some of these healthcare "professionals" at all. This kind of thing really makes me mad, when I was 16 I suffered a hormonal imbalance and my mom was asking this "doctor" what caused it and he goes "It's probably a brain tumor" and walks out like he could give a damn! My mom read him the riot act.
Anyway Raven, don't let that idiot stop you from fighting, GET MAD and fight with all your might! I am praying for you every day and sending you healing rays of white light, may God bless you and give you the strength and courage you need to beat this thing, we all love you!!
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Re: Update.......................................................... -- Angela, 03:43:53 03/23/12 Fri [1]
Raven, I am sickened by your message. I know your doctor is on maternity leave, but this is an emergency situation. Call her at home, explain what has happened and ask for a recommendation to get you in with someone quickly. Medical folks can pull strings when they need to. It sounds like she is a very compassionate person and under the circumstances I am sure will not mind. If you have a favorite nurse there call and plead your case with her. If you're too tired to do it, get one of your advocates to do it for you. I got in to my multiple myeloma doctor because my hair dresser also happened to be his head nurses hair dresser. She asked her for a favor and I had an appointment that day (after my doctor had been trying for two months). I know it's hard now, but don't give up.
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Re: Update.......................................................... -- miss GG, 04:09:40 03/23/12 Fri [1]
this is so heart breaking but like you told us never give up this fight it is a big fight... but your life is so worth fighting for:) my prayers go out to you on your journey...stay strong:)
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Re: Update.......................................................... -- John B (Love & Bigger Hugs!), 06:20:36 03/23/12 Fri [1]
Dear Raven:
That doctor/surgeon is an idiot!! And not a person who should be treating anyone. I'm so glad that you're going to someone else. Sorry that you're in pain, but thankful that your fighting spirit is intact and pushing you forward. Hope your new surgeon is the best because that's what you deserve. Sending you lots of love and bigger hugs than ever before. Keeping the prayers coming too. Hugs!!
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Re: Update.......................................................... -- Ant, 09:44:59 03/23/12 Fri [1]
Raven,
I am so very impressed by your will to fight not surprised but impressed. You have given so much joy to so many and you will FIGHT to continue to do so not only for us because we have come to love you not for your updates that opened the door but now it has gone beyond that on a personal level you have let us in your life and we are all here to check in and see how you are doing here to support you and prey for you and love you like you have loved us all. I write this and truthfully I am not the most sensitive mushy person in the world but I felt compelled to tell you all this, to thank you for everything and please please dont ever give up the fight screw the cold unfeeling doctor who has become desensitized to the human being you just do what you do best FIGHT FIGHT FIGHT and cause what you have created here is more than just blogging or soap updates you have amassed a giant extended family who has you in there thought prayer and most importantly in our hearts!!!! We all love you Raven and please dont stop now just push through you have so much more good to do!!!!
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Re: Update.......................................................... -- PHapin, 10:03:10 03/23/12 Fri [1]
I've enjoyed your posts. Continue to stay strong and think positively. Thank you for the enjoyment you've provided me and your other fans. :-)
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Re: Update.......................................................... -- Kat2, 04:25:11 03/24/12 Sat [1]
I hope you tell your "GOOD" doctor what the "BAD" doctor said. She needs a new partner.
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Re: Update.......................................................... -- Katie, 09:24:49 03/24/12 Sat [1]
Thinking of you Raven. I'm so sorry you are going through all of this. That doctor sounds insanely cruel. I hope you can get better treatment from the surgeon.
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Re: Update.......................................................... -- Caroline, 14:03:19 03/25/12 Sun [1]
Ravenbeauty, some people says the most insensitive things and that doctor most definitely falls in that group. A few years ago I lost my son in an accident and traveling thru the grief I too encountered such ignorance and cruel remarks.
But now I just wanted to say even though I've never met you, like so many people here, I have followed you for a very long time. I'm so, so very sorry you are going thru this terrible ordeal. Please know I am in awe of your courage and my prayers and thoughts and healing vibes are sending your way. I wish there was more we could do to ease your pain, but we are most certainly sending your great big {{{HUGS!!!}}}
Peacefully and with warmest regards and prayers,
Caroline
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Re: Update.......................................................... -- stampurr, 10:47:07 03/26/12 Mon [1]
My dear dear Raven. I remember "meeting" you so long ago on the SOC board. I was always impressed and loved reading what you had to say. I've followed you for a long time although I don't post much any more. I'm so sorry to hear this. I am praying for you and sending you lots of love, light and energy. You are a very special lady. Big hugs to you!
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Re: Update.......................................................... -- Deborah, 04:18:58 03/27/12 Tue [1]
My brother was diagnosed with colon cancer (he's in the 4th stage 3 years ago - he said that he is going to continue to fight.
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Re: Update.......................................................... -- shawn, 13:45:22 03/27/12 Tue [1]
I am sorry to hear of your cancer raven. Most all of my family has died of cancer through the years. It is terrible. I will pray for you. Remember God is love. He loves all his children no matter what and will restore all one day, God bless.
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Re: Update.......................................................... -- Taelyn (Maybe something is here), 16:48:19 03/27/12 Tue [1]
Here is a search page, Perhaps something will give you hope.
I did read that you ***MUST*** have a "Sarcoma" specialist, A regular Oncologist is not informed enough as this is a comlicated and Rare condition. There are also a few Hospitals that have some research programs in place with reasonable success. I dont know where you live but John Hopkins, a place in Texas 'MD Anderson' etc are just a couple.. From what I read you need a Doctor to really fight for your inclusion in a program.. The Battle ahead is hard and scary ,, But Join one of the support groups, their is a favebook, and an online group.. NEVER forget Gods power to grant you a Miracle, But also never stop showing him how hard you are willing to fight for it,. You may have this, but either way,, I hope it helps,,
www.google.com/search?client=safari&rls=en&q=Successful+angiosarcoma+treatment+unconvintional+and+research&ie=UTF-8&oe=UTF-8
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Re: Update.......................................................... -- Pilar (Trusting!), 01:00:47 03/31/12 Sat [1]
Don't you dare let this quack of a doctor get you down! It seems to me that you are in a brink of a miracle & the enemy spoke through that sorry excuse of a woman to break you. He try to put fear, anger, doubt & hopelessness in your mind & sink your heart. God says He is the Lifter of your head & He is the Great Physician. Hold on to your faith, beacuase faith in Jesus Christ is where we get our break throughs. Do not listen to the enemy's lies, he fears the prayers & faith in the name of Jesus because there is Power & authority in His mighty name. Even the wind & waves obey Him. Cancerm all forms of cancer have no power over the Lord. So I, in the mighty name of Jesus bind the enemy from Raven's presence, you cannot speak or manifest to this woman, you can rise against her using her own medical team to bring her down, nor can you bring,the spirit of fear upon her. Our faith does not lie in man, but in the Living God who raised Jesus from the dead. Father breath the breath of life to Raven and command her cells to made whole, for the lesions to & this cancer to gone, for you have the Power in just saying so. I pray that you renew her faith & give her the strength and peace that only YOU can give. Show your mighty hand to her that she can glorify your Holy name above all names. I thank God that we can boldely before your throne in petition for Raven, & I thank you for your mercy and grace.
I bless you withe the Lord's blessing found in Numbers 6:24.
The Lord bless you Raven, The Lord keep you, May the Lord make His face shine upon you Raven and be so gracious unto you, may He lift up His countenance upon you and give you peace. In Jesus name!
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Re: Update.......................................................... -- TexasT, 13:28:59 04/05/12 Thu [1]
Keep fighting Raven. I'm furious to hear about the useless a-hole 'surgeon' that would treat you so callously. You're in my prayers. I hope you know how much you are loved and appreciated.
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