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Saturday, November 16, 2024, -------04:44--pmLogin ] [ Contact Forum Admin ] [ Main index ] [ Post a new message ] [ Search | Check update time | Archives: 123456789[10] ]



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Date Posted: -12:51--am, ------ 04/09/06 Sun
Author: sKewL
Subject: It's real tough when ...
In reply to: Sportyangel 's message, "Skewl, I know how hard it is for your child to be in the hospital....." on -10:16--am, ------ 04/08/06 Sat

they're infants because they can't explain what they are feeling.

But even when they are 13 they can have a hard time tellin ya.

For my guy in some ways this is old hat, but it is not the same surgery or procedure every time. He has had at birth 1 shunt for hydrocephalus and a spinal closure, subsequently 3 shunt revisions, a bladder augmentation, eye surgery, broken femur, fractured tibia and fibula, and a thoraco-lumbar laminectomy. (regular MRI's, x-rays, ultrasounds, CT's, ...)

The bladder augment was real tough. 6 inches of his small intestine was patched into his bladder for capacity,elasticity, and because of spasticity. They really messed with him on that one. He amazed all the Staff because he did not fight them or complain about the tubes through his nose (for feeding), and coming out his belly too (collecting urine), IV's in both arms and a leg. Thankfully in the end there were no tubes to be worrying about.

Sometimes it's a family event.
The roughest time was when my wife had back surgery the day before one of his shunt revisions, thankfully in the same hospital. My wife just transfered rooms, basically.

Anyway, I brought him home before dinner tonight. He wanted gyros " 'cause you can't get that at the hospital. " He ate 2 of 'em! and some fries. I think he's comin around ok.

B-)

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