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Date Posted: 03:31:44 03/31/24 Sun
Author: Knut Holt
Subject: Re: Intubation or a mask at night
In reply to: Gunner 's message, "Re: Intubation or a mask at night" on 12:45:07 03/30/24 Sat

Hi Grant and Gunner

Your story is interesting because I know about a boy from my neighbourhood that had all these affections in his upper respiratory system and similar surgeries, and also orthodontics.

This boy also had a history of inguinal hernia and problems with urination that led to frequent intervantion in his urethra and bladder and also problems in his lower digestive system.

I wonder if younger brother also had urination problems with interventions or lower digestive problems. It looks to me that all these things constitute some syndrom.

I think he felt safe and in some way pleasant to be taken care of by the tubes and equipment he was connected to after his surgeries, and that made him wish he could be taken care of likewise at home, and according to your history it also looks like he needs it.

By the way, does he get some degree of sedation during nights too, and some degree of assisted ventilation at times?

You mention catheter. Having his urin continually drained reduces abdominal pressure which I guess also helps the respiration. Likewise will assistance of the functions in the lower and upper digestive system be of such help. I wonder if you also give him som kind of upper or lower digestive assistance?

Even though you did not tell it directly, it looks like you daily monitor the body functions of younger brother, and decide at daily base what degree of respiratory support and other support he needs during night, like the catheter and monitoring equipment.
It could be interesting to know what you especially check.

It could also be interesting to hear about what degree of function support he gets during day and night when he is sick with flu or other sickness.

By the way, does he lie in his prdinary room and bed when he needs the full support, or have you arranged some kind of intensive care bed or room for these occations?

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