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Date Posted: 06:33:39 03/31/24 Sun
Author: Gunner and Grant
Subject: Re: Intubation or a mask at night
In reply to: Knut Holt 's message, "Re: Intubation or a mask at night" on 03:31:44 03/31/24 Sun

Hi Gunner and Grant her will try our best to answer waht we can

>Hi Grant and Gunner
>
>Your story is interesting because I know about a boy
>from my neighbourhood that had all these affections in
>his upper respiratory system and similar surgeries,
>and also orthodontics.

Grant: I had Braces on my teeth from 10 to 12 and 15 to 16


>
>This boy also had a history of inguinal hernia and
>problems with urination that led to frequent
>intervantion in his urethra and bladder and also
>problems in his lower digestive system.

Gunner: Grant had surgery for a hernia repair at 8 and alos had an isue with his balder taken care of at the same time. I;; see what I can look into at work next time about it as I haven't relly looked into his medical information a lot from before I satred caring for him.

>
>I wonder if younger brother also had urination
>problems with interventions or lower digestive
>problems. It looks to me that all these things
>constitute some syndrom.
>

Grant: The main reason for a cther at night is becuse unlke with a mask I can't take tghe brerthing tune oit at night although I am asl paralizyed from the waist down after an accident at 13 made me an incomplete paraplaigic

Gunner :Grant has no digestive isuses

>I think he felt safe and in some way pleasant to be
>taken care of by the tubes and equipment he was
>connected to after his surgeries, and that made him
>wish he could be taken care of likewise at home, and
>according to your history it also looks like he needs
>it.
>
Grant:Yeah I definitely feel safe and cared for like that

Gunner: Due to Grants spinal injury he has trouble breathing when in a laying position so having help breathing at night helops him along with his previul;sy existing sleep apnia problems



>By the way, does he get some degree of sedation during
>nights too, and some degree of assisted ventilation
>at times?

Gunner: I don't give him any sedtion wghen hes hooked up to the equipment. I just make sure that when hes' intunated that his phone is nearby and he can reach his ear phones to listen to things on his phone

Grant: Yeah I've gotten used to it
>
>You mention catheter. Having his urin continually
>drained reduces abdominal pressure which I guess also
>helps the respiration. Likewise will assistance of the
>functions in the lower and upper digestive system be
>of such help. I wonder if you also give him som kind
>of upper or lower digestive assistance?

Grant : as Gunner said due to my spianl cord injury sometimes I have isues with urination so I sometimes use a catheor either oine put in by gunner or myself

>
>Even though you did not tell it directly, it looks
>like you daily monitor the body functions of younger
>brother, and decide at daily base what degree of
>respiratory support and other support he needs during
>night, like the catheter and monitoring equipment.
>It could be interesting to know what you especially
>check.
>

Gunner: It's hsi call if he want to be tuned or mask or if I'm too tied from work to tune him. Althoiug sometimes if he has a cold I'll tube hima nsd it helpos him get over it fater

>It could also be interesting to hear about what degree
>of function support he gets during day and night when
>he is sick with flu or other sickness.
>

Grant: I don't relly need any breathig suport during the day

Gunner : Pther then waht I mentiond above when hes sick I don't relly have to do much fo him during the day

>By the way, does he lie in his prdinary room and bed
>when he needs the full support, or have you arranged
>some kind of intensive care bed or room for these
>occations?


Gunner: Grant has anormal bed at home we just hae a conor of his room set up with the breathing equepment/ It's not all that big of a set up tough. the main machine is no bigger than a satdard CPAP or BiPap machine

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