Got diagnosed today -- LIMBOLAND

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Date Posted: 12:21:11 09/29/00 Fri
Author: Jeanne
Subject: Got diagnosed today

Hi,

I posted my letter of introduction just a few short weeks ago. Things have moved very fast with my neuro and I realize how lucky I am for that. My diagnosis came today. Based on a very loaded MRI,present physical symptoms and prior symptoms, I am diagnosed as havhing a slow, chronic, progressive form of MS. And this came despite the fact that the lab "lost" part of the spinal results that report the presence or absence of banding. My evoked potential and blood work, as well as the spinal results that did not get lost, all came back normal. It was the very loaded MRI and my medical history that nailed the diagnosis for my neuro. He said the spinal results would not have changed his diagnosis regardless of what they had come back as. He has reemed the lab good for this error. He was quite upset over the whole deal. He has given me Zanaflex for the spasticity. According to him I do not fit the criteria with my HMO for the ABC drugs.So I am on the road to educating myself on what this all means for my future. Despite the diagnosis, Limboland seems like a place that even people with definite MS are in as the future is always an unknown.Thanks for your time. Good luck to all of you in your quest to name the demon you are living with.
Jeanne

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