Re: Does anyone ever feel that they are crazy? -- LIMBOLAND

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Date Posted: 11:44:59 10/03/00 Tue
Author: MelanieMarie
Subject: Re: Does anyone ever feel that they are crazy?
In reply to: sam 's message, "Does anyone ever feel that they are crazy?" on 05:18:46 10/03/00 Tue

It frustrates me sooooo much when it is assumed that just because the tests come back negative for anything that your symptoms suddenly don't matter! The negative tests don't make the symptoms go away!!!! We still have to contend with them! We aren't magically cured!

SAM, I am so sorry for everything that you are going through. I have many, many symptoms, but I haven't suffered near as much as you. Sometimes I feel a little guilty about even seeking medical attention for the stuff I'm going through. I feel like it isn't bad enough.

Look, if you went to four different Phsyciatrists and they told you that your problem isn't a mental one, then it isn't a mental one. Out of the four at least one of them could have milked you for a while....telling you that your problems are from a bad childhood or from holding in your feelings, etc. With the absence of positive diagnostics the shrink could have made a pretty penny off of you. Your lucky that you found four honest ones. I know of people who weren't so lucky.

You aren't losing your mind and neither am I! Keep geting strength and support from this place and MGH. You know that we are in good company.

It's hard isn't it? When I first started on my journey to find out what was wrong with me I thought I wouldn't stop until I has some answers. But we get such mixed signals from the medical community. At first, if you are lucky , they will order the tests. But when they come back negative everything comes to a screeching halt. No answers are answered by no answers. We are literally set adrift on our own.

Sorry about the long post. It's just that things are bothering me these days!

MelanieMarie

> I have been having neurological symptons for 6 years.
> The symptons started out as spasticity in my legs,
> numbness, tingling, twitches in my muscles. Then 3
> years ago I was diagnosed with a neurogenic bladder
> which I have to use a catheter to urinate. Five
> months ago I had optic neuritis in one eye. I did IV
> steroids for 3 days then did an oral taper of steroids
> for 2 weeks. The steroids helped and I feel better
> than I have in a long time. After doing the steroids
> my bladder got better. The doctor doesn't know if it
> was from the steroids or if it got better on its own.
> The problem is that every test that I have had except
> the bladder testing has been negative. I have had
> mri's, emg, spinal tap and because these are negative
> no one will dx me with anything but many times MS has
> been mentioned. I have been to 4 different
> neurologist and after the test come back negative they
> usually say they can't find anything wrong and say
> that I don't need to come back. I feel that I am
> losing my mind. If there is anything wrong than why
> are all of the test normal? Then there are other
> times when I say to myself there has to be something
> wrong because when I walk I always go to the left. No
> matter how hard I try to walk a straight line my body
> always goes toward the left. I have a great family
> doctor who tells me that I am not crazy and calls me
> every couple of weeks to tell me this. No matter how
> many times that I am told this I still doubt my mental
> health. The first neurologist that I went to had said
> that it was a conversion reaction which is when you
> have emotional issuses that you bring out on your
> physical body. I went to 4 different Pshychiatrist
> hoping that they could help and all of them said that
> it was a physical problem and they couldn't help me.
> After all of this I still feel that all of my symptons
> are in my head. Does anyone else feel the way I do?
> I am sorry to make this so long. Thanks for listening
> I appreciate it.

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Replies:

Re: Does anyone ever feel that they are crazy? -- Sara (Kira), 21:33:16 10/03/00 Tue
- Re: Does anyone ever feel that they are crazy? -- MelanieMarie, 10:19:59 10/04/00 Wed