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Subject: Re: cystic hygroma-hydrops any help please!! Author: Maggie [ Next Thread | Previous Thread | Next Message | Previous Message ] Date Posted: 19:16:12 02/04/04 Wed In reply to: Nicole 's message, "Re: cystic hygroma-hydrops any help please!!" on 03:51:16 11/28/03 Fri Hello. I was 19 weeks pregnant when my baby was diagnosed with fetal hydrops and cystic hygroma along with Turner's syndrome. We were told that there was a o% chance of survival. Three weeks later, when I finally got an appointment for a 2nd opinion, I found out that the baby no longer had a heartbeat. This has been the most painful experience of my life. If anyone would like more info, please email me. I will be more than happy to talk to you about this. Sincerely, Maggie [ Next Thread | Previous Thread | Next Message | Previous Message ]

Replies:

[> [> [> [> [> [> [> [> [> [> Subject: Re: cystic hygroma-hydrops any help please!! Author: Laurie [ Edit | View ] Date Posted: 12:38:42 02/10/04 Tue Hi there, I'm so sorry to hear about your baby. I just went through a very similar situation and your right, it is very devasting. However, realize that you did the best you could do for your baby and everything possible. It may be better this way. I lost my baby Sunday February 1st. She didn't have turner syndrome but did have hydrops and down syndrome. I was 23 weeks when I lost her. I am slowly recovering, and you will too. If you want to e-mail me personally to talk more, please feel free to do so. Take care and know that I am thinking of you. Laurie [ Post a Reply to This Message ]

[> [> [> [> [> [> [> [> [> [> [> Subject: Re: cystic hygroma-hydrops any help please!! Author: Liz [ Edit | View ] Date Posted: 14:25:39 06/06/04 Sun I am 17 weeks pregnant and just found out my baby has cysic hygroma and hydrops fetalis. I have never even heard of this and would like to get more information about it. Doctors havent been helpful. My baby is so swollen they cant even tell the sex. I HAVE ALOT OF QUESTIONS. I Dont know what to do and would like to talk to someone who has been though this. I am really scared they said I have a severe case. did anyone have their babys buried? I plan on going through with my pregnancy. Even though they say there is no chance. [ Post a Reply to This Message ]

[> [> [> [> [> [> [> [> [> [> [> [> Subject: Re: cystic hygroma-hydrops any help please!! Author: Monica [ Edit | View ] Date Posted: 16:54:57 06/07/04 Mon Hi Liz, I'm so sorry you are facing this kind of bad diagnosis. If look over the board here, you will see that there are many, many others who have been through it. You have my prayers and my hopes that in your case, things could turn out okay, but if they don't -- that you will have the support of those who love you! Sincerely, Monica [ Post a Reply to This Message ]

[> [> [> [> [> [> [> [> [> [> [> [> Subject: Re: cystic hygroma-hydrops any help please!! Author: Rochelle (finding peace) [ Edit | View ] Date Posted: 12:23:32 06/03/08 Tue I too have been there. I am 28 and just went through the hardest five weeks of my life. When we were 14 weeks along we were told that our baby had a severe case of cystic hygroma-hydrops and there was no hope and prepare for the worst. They knew we were people of faith so they never suggested termination. Those next weeks that felt like months we were on our knees begging God for a miracle. Everyone around us prayed that God would heal our little angel if it was His will. I also prayed the hard prayer that if our baby was going to suffer on earth that God would take it from my womb to his loving arms. At the next app. there was no heart beat and little Grace went home to live with our saviour Jesus Christ. When others found out they were devestated for us, but not us we knew that God got to see the big picture and spared our Grace and us a life of pain. My husband and i said if our story helped even one person it was worth it. This was only a month ago and I am open to sharing more with you and help you through this difficult time. In (2 Cor.1:3)God tells us to use the comfort we recieve from Him to comfort others. Take this waiting time to draw close to God He is close to the brokenhearted. I pray that the peace that surpasses all understanding will comfort you through this trial. E-mail me anytime. Blessings, Grace and Peace to you from our Lord Jesus Christ. Rochelle [ Post a Reply to This Message ]

[> [> [> [> [> [> [> [> [> [> Subject: Re: cystic hygroma-hydrops any help please!! Author: Vickie [ Edit | View ] Date Posted: 08:51:13 03/18/04 Thu I understand your pain. I just recently lost my baby girl on Christmas day 2003 to cystic hygroma with fetal hydrops. I was 27 weeks when I had her on the 23 day of Dec, and she fought for her life for 2 days in the NICU. Because of extra amniotic fluid I tried to go into preterm labor with her and when the contractions were stopped, I stated accumulaating fluid around my heart and lungs and finally we had to decide to do an emergency cesarean section. I feel like you do. I don't have any answers. The doctors thought she had Turner's syndrome before I had her but the results of the chromosomal analysis done showed no chromosomal abnormalities. I've tried searching for answers but have not found none. I know your pain and I truly smpathize with you because I feel the same pain. The only thing I can say is it was God's will for them and somehow we have to accept that and move on somehow. They are in heaven together. [ Post a Reply to This Message ]

[> [> [> [> [> [> [> [> [> [> [> Subject: Re: cystic hygroma-hydrops any help please!! Author: Sandra [ Edit | View ] Date Posted: 17:14:40 04/18/04 Sun Hi Vickie, I am sorry to hear about your daughter passing. My daugther also had hydrops passed away a few hours after birth. It was traumatising to say the least andI think that not knowing the cause of the hydrops is quite frustrating. It odd that in this day and age that awnsers to a situation that affect innocent feotus is still so mysterious. I hope that you are doing better . Sandra. [ Post a Reply to This Message ]