Re: cystic hygroma-hydrops any help please!! -- Poor Prenatal Diagnosis-Advice And Support

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Subject: Re: cystic hygroma-hydrops any help please!!

Author:
Laurie
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Date Posted: 12:38:42 02/10/04 Tue
In reply to: Maggie 's message, "Re: cystic hygroma-hydrops any help please!!" on 19:16:12 02/04/04 Wed

Hi there, I'm so sorry to hear about your baby. I just went through a very similar situation and your right, it is very devasting. However, realize that you did the best you could do for your baby and everything possible. It may be better this way.
I lost my baby Sunday February 1st. She didn't have turner syndrome but did have hydrops and down syndrome. I was 23 weeks when I lost her.
I am slowly recovering, and you will too. If you want to e-mail me personally to talk more, please feel free to do so.
Take care and know that I am thinking of you.

Laurie

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[> [> [> [> [> [> [> [> [> [> [> Subject: Re: cystic hygroma-hydrops any help please!!

Author:
Liz
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Date Posted: 14:25:39 06/06/04 Sun

I am 17 weeks pregnant and just found out my baby has cysic hygroma and hydrops fetalis. I have never even heard of this and would like to get more information about it. Doctors havent been helpful. My baby is so swollen they cant even tell the sex. I HAVE ALOT OF QUESTIONS. I Dont know what to do and would like to talk to someone who has been though this. I am really scared they said I have a severe case. did anyone have their babys buried? I plan on going through with my pregnancy. Even though they say there is no chance.

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[> [> [> [> [> [> [> [> [> [> [> [> Subject: Re: cystic hygroma-hydrops any help please!!

Author:
Monica
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Date Posted: 16:54:57 06/07/04 Mon

Hi Liz,

I'm so sorry you are facing this kind of bad diagnosis. If look over the board here, you will see that there are many, many others who have been through it. You have my prayers and my hopes that in your case, things could turn out okay, but if they don't -- that you will have the support of those who love you!

Sincerely, Monica

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[> [> [> [> [> [> [> [> [> [> [> [> Subject: Re: cystic hygroma-hydrops any help please!!

Author:
Rochelle (finding peace)
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Date Posted: 12:23:32 06/03/08 Tue

I too have been there. I am 28 and just went through the hardest five weeks of my life. When we were 14 weeks along we were told that our baby had a severe case of cystic hygroma-hydrops and there was no hope and prepare for the worst. They knew we were people of faith so they never suggested termination. Those next weeks that felt like months we were on our knees begging God for a miracle. Everyone around us prayed that God would heal our little angel if it was His will. I also prayed the hard prayer that if our baby was going to suffer on earth that God would take it from my womb to his loving arms. At the next app. there was no heart beat and little Grace went home to live with our saviour Jesus Christ. When others found out they were devestated for us, but not us we knew that God got to see the big picture and spared our Grace and us a life of pain. My husband and i said if our story helped even one person it was worth it. This was only a month ago and I am open to sharing more with you and help you through this difficult time. In (2 Cor.1:3)God tells us to use the comfort we recieve from Him to comfort others. Take this waiting time to draw close to God He is close to the brokenhearted. I pray that the peace that surpasses all understanding will comfort you through this trial. E-mail me anytime.

Blessings, Grace and Peace to you from our Lord Jesus Christ. Rochelle

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