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Subject: Re: cystic hygroma-hydrops any help please!! Hello Brad! Author: Shellie [ Next Thread | Previous Thread | Next Message | Previous Message ] Date Posted: 09:45:37 05/04/04 Tue In reply to: Brad 's message, "Re: cystic hygroma-hydrops any help please!!" on 10:45:21 05/03/04 Mon Hi Brad, Thank you so much for updating the board, please continue to do so. I believe that your baby's situation is very hopeful. I'm praying that your little guy won't have Hydrops. If a Cystic Hygroma is the only medical problem, then it is very likely you'll have a good outcome. I don't know how many of the messages you've read on this board, but some of them include photos and stories of babies/children born with this condition...you might find them encouraging. If you want to be directed to these stories, let me know and I'll find them and give them to you. I have no time at the moment, but later I'd be happy to do that for you. Take care, Shellie [ Next Thread | Previous Thread | Next Message | Previous Message ]

Replies:

[> [> [> [> [> [> [> [> Subject: Re: cystic hygroma-hydrops any help please!! Hello Brad! Author: Monica [ Edit | View ] Date Posted: 23:32:35 05/04/04 Tue Great news so far, Brad! Hoping for an even better news as things go on. Plenty of times these ch's can just dissipate on their own . . . wow, wouldn't that be great. Okay, I'll be looking for your next update! Sincerely, Monica [ Post a Reply to This Message ]

[> [> [> [> [> [> [> [> [> Subject: Re: cystic hygroma-hydrops any help please!! My story. Author: Brandie [ Edit | View ] Date Posted: 14:49:11 05/19/07 Sat I am posting this for anyone who is going through something similar to what I have been through. My husband & I have one son & he a thick nuchal fold at my 19 wk u/s, so I did an amnio to confirm he was healthy. All turned out fine & he is now a healthy 3 ½ year old. After 2 losses & IF treatment, my husband & I were so excited to get pregnant after IVF #2. In order to avoid an amnio I decided to go in for a first trimester screen to make sure all was well. I was devastated to learn that the baby had a borderline nuchal measurement (2.8-2.9) and worse yet, they saw a “cystic hygroma”. The perinatologist who came in told me, “This does not look like a healthy baby”. With a statement like that, it was hard to hold on to hope but I did a ton of research so I would be prepared. I learned 50% of babies with cystic hygromas do have chromosome abnormalities. I also learned, you need to go in for a fetal echocardiogram (heart u/s) to make sure there are no heart problems. We elected not to do a CVS since it was a little riskier, but did decide to do an amnio at 16w5d. We received our results back & we are having a healthy little girl. We still need to have more detailed u/s on the heart, but at my last u/s they said it looks just perfect. Also, the cystic hygroma appears to be diminishing & right now it just looks like a thickened nuchal fold, just like my son had. We did not have any hydrops or other abnormalities noted on any u/s. I hope my story can give hope to others out there faced with this diagnosis for their little one. There is hope that all can turn out OK. [ Post a Reply to This Message ]