Advocacy for People with severe learning disabilities/difficulties in Supported Living -- CAIT discussion forum

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Date Posted: 12:56:58 01/02/03 Thu
Author: Linda
Subject: Advocacy for People with severe learning disabilities/difficulties in Supported Living

I am currently working on a project which allows advocacy input for individuals within a long-stay hospital who are to be moved into supported living. Due to the vast communication difficulties the principles of advocacy are being challenged. For example, an individual who has spent the majority of their life within a long-stay hospital environment, even with the best person centred planning may not have a clear idea of what would be the best move for them. As an advocate I am aware that I have to produce information for this decision making process however, this is proving very difficult. I am currently using the BILD advocacy publication for people with learning difficulties, but would like to know of anyone who has previously been in this situation or can recommend any literature or aids. Alternatively, I would like to hear of anyone who has found themselves consulting best-interest advocacy, or if anyone has any good literature or examples of this work.

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[> Re: Advocacy for People with severe learning disabilities/difficulties in Supported Living -- Mr D.J. Stott, 09:34:18 01/20/03 Mon

The situation to which you refer is, regrettably, not an uncommon one.

There are no hard and fast rules to be applied or procedures that must adopted, however, if you would like to discuss the problems that you, have and continue to, experience, then please do not hesitate in contacting me, by E-Mail, at DJSTOTT70@AOL.com

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[> [> Re: Advocacy for People with severe learning disabilities/difficulties in Supported Living -- Linda, 18:42:10 01/28/03 Tue

>Dear Mr. Stott, Thank you for your reply. I have since been in touch with a member of the BILD team, who confirmed my theory that advocacy and 'best interests' do not go together. It was suggested that,maybe it is done as more of a group feeling with the individual at the centre. This I can already relate to around circle meetings I am involved with.

If you have any experiences or suggestions that may help me further, I would be glad to keep in touch.

Many thanks,

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