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Saturday, May 02, 9:11:13 [ Login ] [ Main index ] [ Post a new message ] [ Search | Check update time | Archives: 1, 2, 3, [4], 5, 6, 7 ]
Subject: MONDAY'S DOCTOR UPDATE


Author:
Stacy
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Date Posted: 12:33:27 08/02/05 Tue
 Just to update you on my doctor appointment from yesterday:

I have a CT scan this Wednesday to see how the cancer in my chest is doing. He will use these films as a "measuring tool" for future scans.


As of yesterday, he took me off the steroid. I asked him how we will know if I actually should be on it since it reduces swelling. He said I would start feeling just like I did before the seizure.


If all goes well , which we expect it to, I will start chemo again on Thursday, August 11th. If the scans aren't too bad, I will go on a drug called Navelbine. That is the drug I was hoping he would put me on. He did say that if the scans come back and they look like I'm in trouble, then he would put me on something called Carboplatin and either Taxol or Taxotere. But he's expecting the scans to look the same or only a little worse since I have had very little pain.



He's allowing me to go back on the blood thinner. That's great because they haven't been able to get blood from my port in a long time. I'm getting tired of stuck in the arm!! OUCH!


Also if all goes well, I may be able to go off the anti-seizure drug after 6 months.

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Replies:
[> Subject: Navel beans


Author:
Cliff
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Date Posted: 13:17:33 08/07/05 Sun
What? The doctor said you have navel beans? Beans in your navel????? I guess those would be easier to deal with than kidney beans..... You know, Navelbine seemed to be working well for my dad. The doctor saw shrinkage in the tumor after only two treatments. Unfortunately, other complications arose, so we'll never know just how successful that drug would have been. But it seemed to start working pretty quickly. I hope it does the same for you! I know it caused my dad to feel fatigued, and as you already know, it causes a significant drop in the white cell count at first. But he didn't have any real serious side effects.

Good luck!
[> [> Subject: NAVELS


Author:
Stacy
[ Edit | View ]
Date Posted: 09:18:53 08/08/05 Mon
Hopefully my cocktail will be like my fuzzy navels.

I remember that's what you said about your Dad. I have to admit, that is encouraging. This is the drug that I have a good feeling about. I have felt good about it since the first time he mentioned it months ago. I felt good about the Gemcitabine and it worked great for months.

I don't like drugs that have an X in them, they don't seem to work. I've had Taxol, Taxotere, and Xeloda. I like the drugs that remind me of a drink. Gemcitabine = Jim Beam. Navelbine = Fuzzy Navel. It provides entertainment value.

My doctor told me about the blood counts. He doesn't expect it to be much worse than when I was on the Gemcitabine. I just hope he remembers to expect the unexpected with me.
[> [> [> Subject: Fuzzy Navel Beans


Author:
Cliff
[ Edit | View ]
Date Posted: 23:56:49 08/08/05 Mon
I hope it works well for you. Yeah, your white count will drop at first, but even in my dad's case, the count went back up after a week or so.

Hey--maybe you can ask for Navelbine with Grenadine!
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