Re: saw the nuero-still in limbo! -- LIMBOLAND

[ Show ]

Support VoyForums

[ Shrink ]

VoyForums Announcement: Programming and providing support for this service has been a labor of love since 1997. We are one of the few services online who values our users' privacy, and have never sold your information. We have even fought hard to defend your privacy in legal cases; however, we've done it with almost no financial support -- paying out of pocket to continue providing the service. Due to the issues imposed on us by advertisers, we also stopped hosting most ads on the forums many years ago. We hope you appreciate our efforts.

Show your support by donating any amount. (Note: We are still technically a for-profit company, so your contribution is not tax-deductible.) PayPal Acct: Feedback:

Donate to VoyForums (PayPal):

[ Login ] [ Contact Forum Admin ] [ Main index ] [ Post a new message ] [ Search | Check update time | Archives: 1, 2, 3 ]

[ Next Thread | Previous Thread | Next Message | Previous Message ]

Date Posted: 03:59:33 09/28/00 Thu
Author: SAM
Subject: Re: saw the nuero-still in limbo!
In reply to: MelanieMarie 's message, "Re: saw the nuero-still in limbo!" on 13:12:28 09/27/00 Wed

MelanieMarie,
Thanks for your reply, We are now looking for a new neuro for a second opinion but have decided to wait until after the first of the year to start all of this again as I will need to go to the pcp who I don't really like or find a new one to get a referral for the second opinion. I am so tired right now the effort along with the holidays fast approaching just seems too overwhelming. I am also curious as to what the blood tests come back as again and what my nuero's reaction will be. I do like this guy but MS is not his specialty.My Mom commented that maybe he does have an idea of what it is but wanted the repeat blood tests to confirm his idea and he is using a poker face so as not to scare us. My husband mentioned MS several times along with mylin destruction and at no point did he stir him away from that topic so who knows I may be reading in to his reactions too or actually the lack of them.
Anyway thanks it always helps to get opinions and suggestions and to know I'm not alone.
SAM
> > Dear SAM,
>
> I do think you should get a second oppinion. Have you
> tried to find a neuro that specializes in MS? I think
> that may be your best bet.
>
> I went for a second opinion myself to a neuro whose
> name I got from the National MS Society. Even so, as
> my MRIs and other tests are normal and I exhibit no
> clinical signs of neurological deficits or damage, I
> can't be diagnosed w/anything. It's basically wait
> and see.
>
> Although I am at a standstill diagnosis-wise, I do
> feel good about seeing this new neuro. If nothing
> else, he seems to be much more knowledgeable than the
> last one. This does give me some comfort.
>
> I know that this doesn't help much, but I just wanted
> to tell you that you aren't alone.
>
> Melanie
> >
> >
> > Well I saw him yesterday and he checked my reflexes
> in
> > my knees and ankles, tested arm strength, had me
> squat
> > 5 times, walk on my heels and toes thats it. Didn't
> > even have me take off my shoes! When I asked how my
> > reflexes were he said fine they've always been
> fine...
> > he said they were hyper before.UGH!
> > Took my list of what's been going on and didn't think
> > any of it was important, didn't think that it came in
> > a sort of cycle of worsening and then getting better
> > was important as"the nerves and brain are affected by
> > so many things weather, heat, how well you've eaten,
> > etc." My husband asked about whether this all could
> be
> > caused by damage from the surgery and he said he
> > couldn't say...it might be something that would show
> > up. He didn't order another MRI either He did repeat
> > all my blood tests, they took 8 vials!
> > I cried most of the way home feeling stupid for
> going,
> > feeling crazy he did say that he believes me and
> > there's no discounting my symptons but that nothing
> is
> > showing up. HE says it's all confusing. At least he's
> > admitting he doesn't know and that he wanted to make
> > sure we had touched base again. I guess I was
> > expecting a more thorough exam. He's leaving my meds
> > alone and will call withthe test results.
> > My husband was great and helped me talk through it
> and
> > we have decided to take a more scientific approach to
> > the symptons log, and consider a second oppinion.
> > My husband feels confused about all this as most
> times
> > we can't corralate symptons worsening with any
> > activity for instance I can go out shopping all
> > evening with a friend and just be tired the next day,
> > but I can go to church and sleep for three hours
> > afterwards it makes no sence.
> > If anyone knows a good nuerologist in the western
> > mass, ct. area please post it! I am not ready to see
> > another doctor right now aas I am really frustated
> > with the whole profession but this is at least
> another
> > route to go.
> > He asked me about my memory and thinking before I
> > could bring it up so that was taken care of I told
> him
> > I get overwhelmed and confused easily.
> > So here I am still in limbo thanks for listening.
> > SAM

[ Next Thread | Previous Thread | Next Message | Previous Message ]