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Date Posted: 20:42:10 07/20/02 Sat
Author: Carolyn Bennett
Subject: Re: finding a doctor
In reply to: barb carmichael 's message, "finding a doctor" on 13:41:39 05/12/02 Sun

Barb,

We are moving to Winnipeg in a month and my sons are looking to connect with someone in their general age range to share experiences. May I contact you once we arrive? We will also be looking for a doctor so I was hoping that you and I could share a little bit about that too.

Carolyn


>Hi. I'm contacting you only because you've been there
>done that so to speak. I am 48, my sons are 25 and 21
>and we all have EDS type 3. I have a doctor I can
>depend on but Steve who is 21 6'3" and still growing
>needs one. His knees dislocate with each step and if
>he walks to much his legs swell. I thought maybe you
>could give me a few pointers Thank you PS: My father
>had Marfans my mothers family has EDS we are what's
>known as a mess!

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