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Date Posted: 13:41:39 05/12/02 Sun
Author: barb carmichael
Subject: finding a doctor

Hi. I'm contacting you only because you've been there done that so to speak. I am 48, my sons are 25 and 21 and we all have EDS type 3. I have a doctor I can depend on but Steve who is 21 6'3" and still growing needs one. His knees dislocate with each step and if he walks to much his legs swell. I thought maybe you could give me a few pointers Thank you PS: My father had Marfans my mothers family has EDS we are what's known as a mess!

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