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- Citizen Advocacy Projects -- Monica Costelloe, 13:41:04 05/31/05 Tue
I am currently involved in setting up an independent advocacy group for individuals with an intellectual disability. What experiences have any of you had in this area, and in particular how did you recruit service users and citizen advocates. How many service users do you deal with in a year? Information greatly appreciated.
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Replies:
- NEW JOB VACANCY -- Sylvia Blacklock, 14:15:35 02/17/05 Thu
Swindon Advocacy Movement
Service Manager/Coordinator - full-time 37 hours per week
Starting salary 24,708 per annum plus 5% pension and travel
We are looking for a committed and enthusiastic person with fund raising skills to manage and develop this well respected organisation. S.A.M advocates for people with a learning disability/difficulty.
For an application pack call 01793 542266
or e-mail swindon_advocacy@hotmail.com
Closing date is the 14th March 2005
Registered charity number 1070038
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- Adcocacy Software -- Graham Underdown, 16:47:12 12/06/04 Mon
In West Sussex we operate an advocacy service to enable older people with mental health difficulties to express their needs and make informed choices. The service is very successful and heavily oversubscribed.
We are seeking software to help us manage the information trail. Any ideas anybody?
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- Older Family Carers -- June Smith, 09:39:28 11/23/04 Tue
I am consulting older carers (59+)of people with learning difficulties with regard to having a say in the transition & future support arrangements for their dependants. I would like to hear from anyone who has experience of advocating for or supporting such carers - to know problems & best practice.
Thanks, June
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- Advocacy 'banned' -- Chris Close, 13:15:09 11/09/04 Tue
A client has been told by an Education Department worker that she is not allowed the Advocate of her choice because of a decision by the Director of Social Services who will only 'allow' Advocates 'approved' by her. This decision which has been made in relation to a user led Advocacy service has been made and colluded in by other Statutory agencies and whilst we are challenging it, the Client is not 'allowed' a voice because she does not want the 'voice' they choose to allow her to have.
We have been having problems with the current Director of Social Services and the manner in which she 'achieved' a second star arguably at the expense of services.
Please see our web site with more details.
We feel isolated and oppressed at a time when we should be celebrating 10 successful years in Darlington.
If anyone knows of a similar situation then please let us know and if you wish to support us then either send us an email or the CEO of DBC telling him that you object to what is happening to us after you have read about it on our web site so you clearly know what has gone on.
http://www.advocacy-in-darlington.org.uk
The CEO email is barry.keel@darlington.gov.uk
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- The definition of advocacy -- Paul Williams, 11:14:30 11/25/03 Tue
There is still considerable controversy over the definition of independent non-legal advocacy for individuals who need it. In Britain in recent years the idea has increasingly crept in and been widely accepted that advocacy should only be about respecting the choices of the person advocated for. This is a simple and seductive idea: who could possibly object to empowerment? However, I believe that this greatly restricts the scope and benefit of advocacy. Historically, the concept of independent non-legal advocacy has had three origins. Wolfensberger, who founded the concept of Citizen Advocacy, saw it as protecting people from harm; his viewpoint came from studying what happened to disabled people, gypsies, Jews and other groups in Nazi Germany. John O'Brien saw social exclusion as a major problem for disabled people and other groups; the emphasis in his definition is thus on social inclusion. Alongside these concepts, the self-advocacy movement of many groups proclaimed the need for empowerment, choice and rights. In my view, an advocate for a person needs to consider all three kinds of need of the person they are advocating for: their need for protection from harm, their need for inclusion in mainstream society, and their need for respect for their choices. Usually there will be no conflict between these needs, but occasionally things are more complex. Some of the situations where respecting choice may not be paramount are: when the person's choice cannot be known, where the possible choices are beyond the person's experience, where the possible choices are beyond the person's capacity to understand, where the person's choice is harmful to others, or where the person's choice in the short term is likely to damage their long-term health or social status. If you are advocating for someone with fairly moderate learning difficulties, for example, these difficult issues may never arise, but they can be common in advocacy for offenders, people with drug or alcohol addiction, people with severe mental illness, people who are suicidal, people with severe or profound learning difficulties, and people with extremely unhealthy lifestyles. These are people who really need advocacy, but the advocacy cannot be based solely on respecting choice. The advocate cannot shirk the extremely difficult responsibility of judging and pursuing 'best interest'. My belief is that in these situations no-one can tell the advocate what to do. Only the advocate can decide, based on their relationship with the person. Having been in this situation as an advocate, I can live with being accused of being patronising and disempowering, knowing that the intention of my advocacy has been long-term benefit for the person in health, social inclusion or protection from harm. 'What right do you have to dictate to other people what to do?' people ask me. I have no 'right', but I do think I have a responsibility to contribute to avoidance of harm and to social inclusion for people who are at risk or are excluded. In principle I also of course support empowerment, choice and rights, but not above all other considerations. So please don't let us go down the road of insisting that advocacy must in all circumstances respect people's choice. This would exclude a great deal of invaluable advocacy that goes on for people who are greatly at risk.
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Replies:
- Abuse Policies -- Isabelle, 13:47:44 10/28/03 Tue
I am trying to establish what policies (if any), other advocacy organisations have in place, to deal with disclosure of abuse by advocacy clients.
If anyone has a specific policy or organisation guidelines I would be very grateful if you would forward them to me.
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Replies:
- job vacancy -- john brennan, 08:50:32 08/06/04 Fri
Advocacy Voice
Advocacy worker /coordinator (Ealing) maternity cover, initially to December 2004
16,881 per annum plus benefits. Up to 28 hours per week.
Advocacy Voice provides a high quality service enabling people with learning disabilities, in the boroughs of Ealing and Harrow to obtain their full rights and privileges as citizens. We have a maternity cover vacancy and are recruiting an advocacy worker / coordinator.
We are looking for someone with very good organisational and interpersonal skills. Knowledge and understanding of the issues facing people with learning disabilities and the basic principles of advocacy are essential. Candidates must display a clear commitment to equal opportunities.
For an application pack, email us at mail@advocacyvoice.com or call 020 8422 4535
Closing date: 1st Sept 2004
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- Marriage counselling -- Lucy - East Cheshire Advocacy, 08:38:58 08/04/04 Wed
Hello,
Can anyone recommend a "Relate" style marriage counsellor who has experience of working with people who have learning disabilities. We are looking for someone based in the North West.
Thank you,
Lucy
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- Court of Protectiuon -- John, 10:54:43 04/04/03 Fri
I am advocating for someone who has learning disabilities and mental health issues, and they want to challenge threir court of protection. Has anyone got experience of this, or does anyone know of any successes or failings in having court of protection overturned?
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Replies:
- Risk assessment -- Steve, 08:00:42 05/25/04 Tue
Wondered if anyone had any thoughts on the use of formal risk assessments being performed on mental health clients wishing to access advocacy services. This is something that is being imposed on our services by our employers and is something that we (our service) is totally opposed to.
Quick responses would be appreciated
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- all-postal voteing elections -- Jim Payne, 08:49:55 05/17/04 Mon
I have recieved a card telling me that the only way I can vote is by post. If I wanted to do this I would have applied to do this before now.Have I had my civil rights taken from me, the way the post at this time is not sure of getting my vote on time.When I went to the polling station my vote was registerd and collected so that my vote was safe.
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Replies:
- Asperger-savvy advocates in Exeter area -- Louisa Radice, 07:56:48 04/28/04 Wed
I am a 29-year-old woman with Asperger syndrome living in Exeter. Are there any advocates near me who are knowledgeable about AS? I've brought up this topic at the so-called support group I attend, but all that happened was the (neurotypical) leader made a great spiel of putting it on the agenda for that evening's meeting, only for us to run out of time. So I'm still none the wiser.
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- Road Show -- Beth McDonagh, 09:05:00 04/01/04 Thu
I am looking for advise on running a road show to promote advocacy to Adult Learning disability persons.Any help & advice would be appreciated.
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- Job Vacancy -- Diana Thomas, 15:36:38 03/01/04 Mon
CITIZEN ADVOCACY WORKER 18,582 PER ANNUM PLUS 5% PENSION AND TRAVEL EXPENSES. 37 HOURS PER WEEK. MUST BE A CAR OWNER.
Swindon Advocacy Movement provides a citizen advocacy service to adults with a learning difficulty in Swindon. We are looking for a new worker who will run the crisis advocacy service, be involved in Person Centred Planning, and the recruiting, training and supporting of volunteer advocates. Applicants will need to to have experience of working with, and respecting the rights of people who have a learning difficulty.
For an application contact DIANA THOMAS, THE HEALTH HYDRO, MILTON ROAD, SWINDON, SN1 5JA, quoting ref: CA or call 01793 465660. CLOSING DATE IS FRIDAY 16TH APRIL 2004.
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- West Midlands Mental Health Advocacy Network -- Barbara Crosland, NIMHE West Midlands, 11:40:18 01/02/04 Fri
I am a user involvement/ social inclusion lead with the National Institute for Mental Health in England. We are looking to set up an Advocacy Network for the West Midlands region. I am keen to hear from Citizen Advocacy projects as to their experiences of such networks, and what they would find helpful to support them in thier work.
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- Involving patients and the public (Staffordshire University) -- Elizabeth Boath - Centre for Health Policy and Practice, 12:17:09 11/26/02 Tue
I am currently writing a 2nd edition of 'Involving Patients and the Public: How to do it better', which will be due out early next year. I am currently updating websites. If you have a website that you feel would be relevant, then I would love to hear about it.
I am also seeking examples of good practice to put in as examples, so would be delighted to hear about these as well.
Many thanks and I look forward to hearing from you.
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Replies:
- evaluation tools -- Lucy Whiting (Add A Voice), 09:07:56 08/22/03 Fri
Is anyone out there awware of any good evaluation packages/tools that we can use when evaluating the effectiveness of our service? At the moment we distribute a questionnaire to service users but we are finding it only measures a very small part of their 'experience'. We are ideally looking to find other groups who have an effective way of measuring how satisfied clients were with the advocacy services provided.
Any information you can give us would be much appreciated.
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- Adding more support hours to a direct payment agreement -- Julie Sullivan, 13:46:38 08/14/03 Thu
I would like to hear from anyone who has had the experience of adding extra support hours to a direct payment package that is already up and running. We are an advocacy agency and one of our advocates supports someone who receives direct payment for their support worker but really needs more hours to provide enough support. The social worker feels this will not be possible so we'd like to find someone who has successfully requested additional hours/funding. Thankyou.
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- Housing difficulties -- Elinor Harbridge, 08:55:30 04/25/03 Fri
We have been hearing stories about councils being given very short
notice to find alternative housing for people with learning difficulties
housed by private companies. This is resulting in relationships being
broken up and older people having to relocate to new areas where they
have no familiar contacts. I am writing this up for the next issue of
Community Living and would be interested in hearing if any of your
members have experiences they would like to share (these could be
anonymous if wished). Would it be possible to circulate them with this
request?
With thanks
Elinor Harbridge
Editor
Community Living
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- Incorporation -- Anne Lynch, OSCA, 10:18:07 03/19/03 Wed
Our Trustees are considering incorporation. We provide citizen and issue based advocacy throughout Shropshire, employ 3 - 6 people and use more than one funding pot. We would like to hear from other organisations who have also considered incorporation and either decided not to go ahead, or have incorporated and the basis on which they made their decision. It seems that the only real reason to do so is to limit the personal liability of the trustees. However, it does not protect against incompetence or fraud. Another option would appear to be a limited partnership - anyone have any experience of that?
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- confidentiality -- John (Speak Out In Hounslow), 18:03:33 11/20/02 Wed
During the interview of a volunteer, they asked me what they should do if their partner disclosed abuse to them? Bearing in mind the principle of loyalty to the partner, and if the partner wished this not to be disclosed further, how would you answer the volunteer?
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Replies:
- Advocacy for People with severe learning disabilities/difficulties in Supported Living -- Linda, 12:56:58 01/02/03 Thu
I am currently working on a project which allows advocacy input for individuals within a long-stay hospital who are to be moved into supported living. Due to the vast communication difficulties the principles of advocacy are being challenged. For example, an individual who has spent the majority of their life within a long-stay hospital environment, even with the best person centred planning may not have a clear idea of what would be the best move for them. As an advocate I am aware that I have to produce information for this decision making process however, this is proving very difficult. I am currently using the BILD advocacy publication for people with learning difficulties, but would like to know of anyone who has previously been in this situation or can recommend any literature or aids. Alternatively, I would like to hear of anyone who has found themselves consulting best-interest advocacy, or if anyone has any good literature or examples of this work.
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Replies:
- Advocacy for young learning disabled people in transition -- Nigel Caldwell (Sounds Good), 12:12:46 11/21/02 Thu
There is increasing interest in offering advocacy support to young learning disabled people in transition (broad range 14 years - 25 years)from school to adult life. It seems clear that young people look to people around their own age for support. Has anyone had experience of recruiting, supporting (and keeping ) young people as advocates? I would be interested to hear what worked and what didn't! so it can be shared among the increasing number of projects working with young people.
Cheers Nigel
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